I have a few "pokers in the fire" in the Lower Mainland and Vancouver Island, but can't report any success yet. One is a GP (elderly) with a very open mind, another MD outside the mainstream, and a radiologist, who is very intrigued, but doesn't image vascular systems. He has dropped a few lines to colleagues, with mostly dubious response. All are willing to refer.
So far, this is through an arm's length advocate, but I sense a good potential. After my experience with my (now fired) GP, I am being careful not to booby-trap anything. I am being methodical (which is an euphemism for fighting through the cognitive problems that plague me)
Of course, these holidays slow things down too.
My name is not really Johnson. MSed up since 1993