I appreciate the threads re: private money being donated to various Canadian Studies, each proporting a minumum of 500,000 for each study.
I just do not understand why we are letting the Societies off so easy, these people are academics, (I will even speculate at the national level those that work there have never been touched by MS directly)
They are bogged down by small mindedness, they are unable to think outside of there box, everything is orientated to the dollar, the survival of the Society. The survival of there fifedoms.
A research grant for a lousy 100,000 /year for 2 years -this is there response to CCSVI research. That my friends is a joke, a slap in the face to all that suffer and support MS in this country. The Society by its own mandate/mission statement exsists for one reason only-to Eliminate MS.
Holidays are coming to an end, family business has been taking care of. Now is the time to WAKE up the Society to the wish's of the People.
They have OUR MONEY, money that is walked for, biked for, its money that when condolances are made the grieving family invariably askes that you donate it to the Society. Corporate sponsorships (Rona) great supporter. Yet they see fit to extend a lousy 200,000 over 2 years & that takes 6 months to put through the pipeline.
Its time to start a campaign of education for MS CANADA, The Society needs to understand that we the People will no longer support RESEARCH
(do not mix up the local chapters with the National their work is imperative in supporting the grass roots afflicted) They have helped my wife & I personally with some equipment.
Email, phone, boycott fundraising, talk to the local chapter so they can communicate with the National of your disconcern. Obtain & document your medical professionals opinion on CCSVI. Call, write, email your government elected, educate them on CCSVI research and request spending of tax payers dollars be directed towards the CCSVI research.
The Society needs to understand that this research is going to happen.
MSers are either going to support MS Canada because they Support us OR we will take the necessary steps to educate those in our community that the Society is No Longer our voice and funds should be redirected to those research programs supporting CCSVI.
By putting the heat on the Society we will obtain the necessary press to educate the masses regarding CCSVI research the last thing the MS Society wants is BAD PRESS.
Could you imagine people showing up at the next MS WALK with picket signs! Can you imagine the reaction from Rona if people in wheel chairs start picketing in front of there stores re MS Canadas minimal support of CCSVI.
The Society must learn this is a real probability if they do not change there attitude towards CCSVI.
It takes 30 minutes of your time, emails , a letter , a few phone calls.
I as always will cut/paste my my TIMS post and send them to MS CANADA, if they reply I will update you.
If you agree please add to this thread your efforts & responses. We need to HEARD! The Society reads TIMS do not let me be a lone voice. ACT, share your ideas to help get our message accross!
-keep the heat to the feet-
this board is read by people afflicted by MS from around the world, Canada is said to have one of the highest per capita affliction rates.
You would Expect Canada to lead the fight in this CCSVI Research and as a Canadian I expect nothing less. Help us motivate MS Canada! please send them your personal thoughts regarding the importance of CCSVI for all of us. MS has no Boundaries and either should CCSVI research.