6th Jan 2010 (Katowice) - POST-OP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby ozarkcanoer » Sun Jan 03, 2010 3:33 pm

Wow, the 6th of January is just 3 days away !!! Good luck !!!

ozarkcanoer
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Postby Katie41 » Sun Jan 03, 2010 4:34 pm

Good luck to you! I'm so excited for you!
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Postby pgm1 » Sun Jan 03, 2010 5:22 pm

I am very happy for you,wish you all the best!

Pam :)
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Postby Alica » Sun Jan 03, 2010 5:46 pm

Good luck. I hope there won't be any complications.
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Blessings..

Postby leetz » Sun Jan 03, 2010 9:00 pm

May you have a wonderful and successful journey....please fill us in!!!

Leetz
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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Postby broomdancer » Mon Jan 04, 2010 6:06 am

Good Luck!
I am so excited for you!!!
Please keep us posted we will be going sometime in August.
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Postby IbRiz » Mon Jan 04, 2010 6:50 am

Hi greyman - good luck on your journey!

I hope it will be successful.

When you have some spare time in Katowice - there is a big mall called "Silesia City Center" near the center. There are some nice restaurants - even a fabulous sushi-restaurant - not to be missed :-) Most of all - it is a good place to get away from the weather (coooold and rainy/foggy).

In the food-court there is free wifi - an excelllent place to write on TIMS :wink:

Christian
RRMS Dx'd 2009
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Greyman in Poland

Postby Dovechick » Mon Jan 04, 2010 7:19 am

Only two days to go. Good luck Greyman and I hope it all goes smoothly. We are going on the 17th February, so will miss you by a long way, but hope to learn from your experience.
May it be a great one.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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Postby greyman » Mon Jan 04, 2010 7:22 am

Once again - thank you for your words of support. They mean a lot to me.
I'm mentally preparing for the whole thing. Not too distant thing, though - Katowice is only 200 kilometers from where I live in Poland :).
I'm leaving tomorrow at noon CET (GMT+2h). The plan is that I'll be admitted to the hospital late afternoon and have the procedure after following 24 hours.
Keep your fingers crossed. Especially for my vertigo to be not that disturbing during the op. Alas I'm sure it will occur. Hopefully not that bad.
I'll try to write something when I'm still there, but cannot promise anything.
All the best to you, TIMSers!
Adam
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Postby CRHInv » Mon Jan 04, 2010 7:51 am

I am so excited for you! I hope this is your answer. I can't wait to hear how you are doing after the procedure!
Take good care,
Beth
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby ClaireParry » Mon Jan 04, 2010 10:09 am

Hi Greyman,

sending my best wishes to you and yours. Hope it all goes to plan. I know it will :wink:

Claire
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Postby Pepe » Tue Jan 05, 2010 12:36 pm

Hi Greyman,

Good luck... all the best to you...

Please, keep us informed after the procedure.

Best wishes,

Pepe.
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Postby greyman » Wed Jan 06, 2010 12:40 am

Hey. Writing to you from a bed in the Euromedic centre and using cell phone. I have EKG electrodes attached to my chest, plastic tube in my arm vein and blood gone for testing. My procedure is to start 16-18 CET. There was a couple of procedures yesterday. I heard that one lady, although diagnosed with having stenoses, got neither balloons nor stents. When the doctors got into the jugular saw no problems and had to back out. Strange...
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Postby ErikaSlovakia » Wed Jan 06, 2010 1:13 am

greyman wrote:Hey. Writing to you from a bed in the Euromedic centre and using cell phone. I have EKG electrodes attached to my chest, plastic tube in my arm vein and blood gone for testing. My procedure is to start 16-18 CET. There was a couple of procedures yesterday. I heard that one lady, although diagnosed with having stenoses, got neither balloons nor stents. When the doctors got into the jugular saw no problems and had to back out. Strange...

I think it was a German lady. She had more tests after and the problem was found. She will go for her treatment again. It is good that they do not risk anythink. Good luck! Say hi to all nurses and doctors from me, please!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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re testing

Postby Dovechick » Wed Jan 06, 2010 1:39 am

Erika, It is indeed reassuring that the doctors are careful about placing these stents. It seems to me that they have a careful and thoughtful practice going on there.
Greyman good luck, I will be thinking about you and looking forward to your updates. This is a first... live blog/commentary during treatment...
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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