This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Thu May 23, 2013 8:57 pm

View unanswered posts | View active topics


Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 3 of 7
  [ 102 posts ]  Go to page Previous  1, 2, 3, 4, 5, 6, 7  Next
  Print view Previous topic | Next topic 
Author Message
AlmostClever
 Post subject:
PostPosted: Wed Jan 06, 2010 1:57 am 
Offline
Family Elder

Joined: Mon Dec 21, 2009 4:00 pm
Posts: 366
Location: Houston, TX
Fascinating thread!

Good luck grey! Can't wait to hear your next update!
Top
 Profile  
 
greyman
 Post subject:
PostPosted: Wed Jan 06, 2010 2:38 am 
Offline
Family Member
User avatar

Joined: Thu Dec 10, 2009 4:00 pm
Posts: 70
Location: Poland
They said that I should also be examined by an eye doctor prior to the procedure. Why? Anyway I should have been taken there already 40 mins ago.
I have a question to the liberated ones. What kind of anaesthetic do you get? Is it the painful one injected to your spine?


Last edited by greyman on Wed Jan 06, 2010 3:17 am, edited 1 time in total.

Top
 Profile  
 
ClaireParry
 Post subject:
PostPosted: Wed Jan 06, 2010 2:41 am 
Offline
Family Elder
User avatar

Joined: Tue Oct 20, 2009 3:00 pm
Posts: 218
Location: Worcestershire, U.K
Erika - you are a mine of information. When I read what Greyman had to say my heart sank - bless you x
Top
 Profile  
 
ClaireParry
 Post subject:
PostPosted: Wed Jan 06, 2010 2:43 am 
Offline
Family Elder
User avatar

Joined: Tue Oct 20, 2009 3:00 pm
Posts: 218
Location: Worcestershire, U.K
Can't answer your questions Greyman, but good luck x Hope to hear from you soon.
Top
 Profile  
 
Dovechick
 Post subject: anaesthetic
PostPosted: Wed Jan 06, 2010 3:01 am 
Offline
Family Elder
User avatar

Joined: Sun Feb 12, 2006 4:00 pm
Posts: 345
Location: Sussex UK
greyman wrote:
They said that I should also be examined by an eye doctor prior to the procedure. Why? Anyway I should have been taken there already 40 mins ago.
I have a question to the liberated ones. What kind of anesthetic do you get? Is it the painful one injected to your spine?

Not been liberated myself but I read that it was a local anaesthetic not an epidural.

_________________
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
Top
 Profile  
 
Mutley
 Post subject:
PostPosted: Wed Jan 06, 2010 3:07 am 
Offline
Family Elder
User avatar

Joined: Thu Nov 12, 2009 4:00 pm
Posts: 207
Location: England
greyman wrote:
I have a question to the liberated ones. What kind of anesthetic do you get? Is it the painful one injected to your spine?


Hi Greyman,

Don't worry, its just a sedative that gets pumped into the air via the tube clipped under your nose! You also get a local anaestetic injected by your groin so that you don't feel the probe etc.

Best of luck today, very excited for you!

_________________
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
Top
 Profile  
 
crocky
 Post subject:
PostPosted: Wed Jan 06, 2010 3:15 am 
Offline
Family Member
User avatar

Joined: Wed Nov 25, 2009 4:00 pm
Posts: 69
Just adding my good wishes of lots of luck and success for today, and am looking forward to hearing all your updates.
Best wishes - Suzanne
Top
 Profile  
 
greyman
 Post subject:
PostPosted: Wed Jan 06, 2010 4:04 am 
Offline
Family Member
User avatar

Joined: Thu Dec 10, 2009 4:00 pm
Posts: 70
Location: Poland
I still haven't been taken to the eye doctor.
Currently nervous about two things:
Can I have my head inclined during the op to avoid vertigo?
How will my body react to the dye?
Top
 Profile  
 
kats
 Post subject:
PostPosted: Wed Jan 06, 2010 4:18 am 
Offline
Family Member
User avatar

Joined: Tue Dec 08, 2009 4:00 pm
Posts: 39
:D Happy 4 u Greyman.
Please keep us updated on your progress.
All the very best and look forward to hearing all about your improvements.
Top
 Profile  
 
colmmc
 Post subject:
PostPosted: Wed Jan 06, 2010 5:16 am 
Offline
Family Member
User avatar

Joined: Tue Dec 15, 2009 4:00 pm
Posts: 73
Location: Knutsford England
I keep getting asked How many procedures have been done by Dr Simka
anybody got any Idea?
colmmc
Top
 Profile  
 
greyman
 Post subject:
PostPosted: Wed Jan 06, 2010 5:41 am 
Offline
Family Member
User avatar

Joined: Thu Dec 10, 2009 4:00 pm
Posts: 70
Location: Poland
This is my last report before the procedure. I will have it in app. 3h.
Keep your fingers crossed!
Top
 Profile  
 
colmmc
 Post subject:
PostPosted: Wed Jan 06, 2010 5:47 am 
Offline
Family Member
User avatar

Joined: Tue Dec 15, 2009 4:00 pm
Posts: 73
Location: Knutsford England
Got everything crossed for you!

colmmc
Top
 Profile  
 
Dovechick
 Post subject: numbers
PostPosted: Wed Jan 06, 2010 5:49 am 
Offline
Family Elder
User avatar

Joined: Sun Feb 12, 2006 4:00 pm
Posts: 345
Location: Sussex UK
colmmc wrote:
I keep getting asked How many procedures have been done by Dr Simka
anybody got any Idea?
colmmc


Dr Simka is the radiologist/doppler specialist who was trained in Italy and has trained others since. He does not do the procedures, Dr Ludyga does. I'm not sure how many they have done, but when I first heard about them it was 6, since then of course they seemed to have screened and operated on many more patients from all over the world. Greyman was saying that 3 or 4 people were having the intervention done whilst he was waiting for his. You could ask Erika, she is in touch with people from different countries and has probably got a better idea than me. Edser also seems to chat to people on different website....

_________________
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
Top
 Profile  
 
Pepe
 Post subject:
PostPosted: Wed Jan 06, 2010 6:07 am 
Offline
Family Elder
User avatar

Joined: Sat Oct 17, 2009 3:00 pm
Posts: 141
Hi Greyman,

Good luck to you...

Pepe.
Top
 Profile  
 
greyman
 Post subject:
PostPosted: Wed Jan 06, 2010 11:32 am 
Offline
Family Member
User avatar

Joined: Thu Dec 10, 2009 4:00 pm
Posts: 70
Location: Poland
Guess what. An hour ago my procedure was finished!
After the whole thing dr. Ludyga said 'Prosze pana super!' which means something like 'awesome, mister!'.
No stents, just balloons. More details to come when I get back home tomorrow.
Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 3 of 7
  [ 102 posts ]  Go to page Previous  1, 2, 3, 4, 5, 6, 7  Next

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Erika is in Katowice

[ Go to pageGo to page: 1, 2, 3 ]

Fatima

37

3474

Sat Nov 07, 2009 1:08 pm

ErikaSlovakia View the latest post

There are no new unread posts for this topic. In Katowice, Poland now :D

lilaclomax

14

1710

Thu Mar 18, 2010 11:43 pm

hope410 View the latest post

There are no new unread posts for this topic. Katowice May 24th, anyone else

annie66

2

815

Sun May 02, 2010 8:27 am

annie66 View the latest post

There are no new unread posts for this topic. Miia in Katowice May 09-15, anyone else??

Miia

4

1005

Wed May 12, 2010 2:01 am

mags4short View the latest post

There are no new unread posts for this topic. Katowice 12 of July

Hanna

0

739

Thu May 13, 2010 8:24 am

Hanna View the latest post

 


Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: