6th Jan 2010 (Katowice) - POST-OP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Johnson » Thu Jan 07, 2010 3:29 am

Can you take collodial silver and go in an MRI?:)

I don't see why not, as it is non-ferrous.

Always do your own research though, and I would probably mention to the MRI tech that I had taken some. Read a lawyer's take on it here. I don't take medical advice from lawyers, though.

There is the possibility of turning blue/grey (argyria), if large amounts are taken, but everything in moderation, and all.
My name is not really Johnson. MSed up since 1993
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Postby greyman » Thu Jan 07, 2010 6:50 am

Hi folks
I'm back home and veeery tired. I woke up today at 3:40 a.m. and haven't slept since. Or rather the nurse woke me up, although she was really quiet. I just wasn't too fast asleep.
So, I won't be reporting of any pre-procedure issues because all of that you know from the live blogging:).
At around 5:15 p.m. they took me to the operating room. When I entered it I noticed a little tilt in the place where the head was supposed to rest. It seemed that they had listened to my prayers and taken seriously the vertigo drawback. When I had lied down, I noticed that this inclination wasn't steep enough, so I asked for something additional to be placed under my head. The nurses were hesitant about it, but the anesthesiologist lady doctor said "give him something, we can't allow him to fly away during the procedure!". So, I was comfortable and a little less nervous. The anesthesiologist gave me then an IV sedative (yes, Mutley - the thing pumped into your nose was just pure oxygen ;)) and finally my left leg stopped shaking. Then one of the doctors gave me this local anesthetic and dye afterwards. Oddly I felt heat only in my testicles. This was the moment when the rest of the crew, led by dr. Ludyga, came in. And in this very moment, the anesthesiologist gave me another portion of the sedative and I got reeeally calm. And to be honest everything else happened in a flash. The only thing I noticed during the op was a little "pop, pop, pop" in my jugular veins. They finished in no time, something like 20, maybe 30 minutes. And then the famous words "Prosze pana, super!" were said. When everyone but the leader and the nurses left, dr. Ludyga showed me the blood flow in my right jug before and after the ballooning, and explained what had happened. Then, the nurses carried me to a mobile bed (on which I lied flat supine without vertigo - the balloons or only the sedative did the job?) and transported to my original bed on which I also lied supine without dizziness. My mother noticed that my hands were warm which hadn't happened for a very long time.
How am I feeling today? Not too good, really. I think that the reasons for that are lack of sleep, hunger (you need to have empty stomach before and after the op) and not working out for some time. However my parents are pretty sure that my walking and gait are better. Maybe. A bit. I don't want to expect too much not to be disappointed.

I really would like to thank you all for your support. It helped me a lot. It caused my nerves to go away, at least in the moments when I was reading TIMS. Thanks!

I think that now, right after late lunch, I will cut myself a nap. I will answer questions asked in this thread later. However, if you have any more questions, feel free.

Once again, thank you, TIMSers!

Last edited by greyman on Thu Jan 07, 2010 11:18 am, edited 1 time in total.
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Postby Algis » Thu Jan 07, 2010 6:55 am

Way to go Adam! Enjoy some good food and a good rest! Our questions can wait.

Be well!!
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Postby Pepe » Thu Jan 07, 2010 7:30 am

Congrats Adam!!!
Well done. We wish you a very quick recovery!!!

I have just translated your last message to my wife...and she told me to send to you a big hug. As you probably know she will be there in 2 weeks.

Prosze pana, super

All the best to you!!!
Last edited by Pepe on Fri Jan 08, 2010 1:13 am, edited 1 time in total.
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Postby Ernst » Thu Jan 07, 2010 9:00 am

Thank you for good report Adam,

always great to read your stories from operations and what happens days, weeks, months after. Get rest now and hopefully you'll get great imrovements now on.

Erkki from Finland
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8

Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
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Postby cheerleader » Thu Jan 07, 2010 9:06 am

Thanks for sharing, Adam. Take it slowly, let your body heal. I liked reading about your Mom noticing your warm hands....give your parents a hug for me :)
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
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Postby crocky » Thu Jan 07, 2010 9:11 am

Great to hear from you so soon after your procedure - its just so exciting for all of us on the waiting list.
Get some rest, food, chill a bit etc - then when you are ready we are all dying to hear more about how you are doing.
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Postby SandyK » Thu Jan 07, 2010 11:37 am

Another person saved from a wheelchair! Thank god! Be well.
Diagnosed 1994, Self EDSS is 6.5
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Postby sunlounger » Thu Jan 07, 2010 12:49 pm

thanks for the detailed report
great to hear your procedure went so well :D
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Great news

Postby Dovechick » Thu Jan 07, 2010 1:10 pm

Adam, I'm a bit late with the congrats but the automatic mailing failed me on this thread. But I'm really pleased to hear about your hands, this is a good early sign and when you have had some good rest and food hopefully you will find some other things that are getting better.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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Postby pgm1 » Thu Jan 07, 2010 1:51 pm

Hi Adam
So glad to hear you are doing well and nice that your parents were there
hope you keep going well.
Rest Well Adam

Pam :)
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Postby broomdancer » Thu Jan 07, 2010 4:50 pm

Thank you so much for your postings. It means a lot to those of us who are patiently waiting. Good luck, be well and look forward to a far better future and please keep letting us know of your progress, when you are stronger.
Thank you again.
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Postby JoyIsMyStrength » Thu Jan 07, 2010 7:04 pm

Greyman, congratulations on getting the procedure. We are all cheering you on in your recovery.

This will be a little difficult to express properly, plus I'm new here so bear with me. It occurs to me that in the event things aren't going as well as you had hoped, you might be feeling an odd sort of pressure, like we're all counting on you to validate that this procedure works. That wouldn't be fair nor is it true. We want to know how you're doing, good or bad, because we are a family and because we care. No pressure. Take your time. We'll be here when you get back. :-)

So... be at peace and know that we are in this journey together. You are brave and I for one am grateful to each and every one of the MS patients here who have gone ahead of us and pioneered having this procedure.

Stay positive and get some rest.

Pam-Joy (I guess there are 2 Pams so I'm adding a suffix!)
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Postby Katie41 » Thu Jan 07, 2010 7:18 pm

Hi Adam,
Thanks so much for your detailed report. Every account makes our journey that much easier. Continue to rest, improve, and heal. All the best!
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Postby jewelia » Thu Jan 07, 2010 7:26 pm

Adam, I send my love & healing blessings to you. Please take it easy and try to relax... our thoughts are with you on your healing journey.
(P.S. my son's name is Adam too!)
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