CCSVI Boston area

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI Boston area

Postby EnjoyingTheRide » Sun Jan 03, 2010 5:52 am

Has anyone in the greater Boston area had any luck discussing this issue with their doctor(s)? Boston has so many top notch hospitals and universities. I'd like to team up with anyone who is interested, just to see what kind of trouble we can stir up 8O
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Postby Arcee » Sun Jan 03, 2010 7:58 am

Hi Mitch, happy to explore this with you. I am in Boston and was treated by Dr. Dake this past summer and have discussed it with a bunch of doctors here. In addition, there are several of us north easters who have been doing considerable outreach in the area and have received a wide range of responses.
Best to discuss privately for now. How about you PM me with a separate email address or a phone number?
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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