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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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EnjoyingTheRide
 Post subject: CCSVI Boston area
PostPosted: Sun Jan 03, 2010 6:52 am 
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Joined: Thu Nov 12, 2009 4:00 pm
Posts: 75
Location: Maine
Has anyone in the greater Boston area had any luck discussing this issue with their doctor(s)? Boston has so many top notch hospitals and universities. I'd like to team up with anyone who is interested, just to see what kind of trouble we can stir up 8O

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Arcee
 Post subject:
PostPosted: Sun Jan 03, 2010 8:58 am 
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Joined: Wed Jan 05, 2005 4:00 pm
Posts: 338
Location: Massachusetts, USA
Hi Mitch, happy to explore this with you. I am in Boston and was treated by Dr. Dake this past summer and have discussed it with a bunch of doctors here. In addition, there are several of us north easters who have been doing considerable outreach in the area and have received a wide range of responses.
Best to discuss privately for now. How about you PM me with a separate email address or a phone number?

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diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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