Calling Dr Simkas patients.........

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby acol » Wed Jan 20, 2010 10:15 am

Hi Zeureka

Thank very much for all this information. I have to go out in a minute and so I look at what you have suggested in more detail when I return. Your post looks really interesting. Everyone is so helpful on this board. Wonderful people!
Nigel
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Postby acol » Wed Jan 20, 2010 10:18 am

The difference in time zones make it look like I'm going out at 4.15 in the morning. It is only 6.15 on Wednesday evening in England!
Nigel
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Postby Zeureka » Wed Jan 20, 2010 12:44 pm

acol wrote:The difference in time zones make it look like I'm going out at 4.15 in the morning. It is only 6.15 on Wednesday evening in England!

Same for me...I think you can change that in the profile, but I was wondering what should choose and in end just left it - would not bother as on this international forum the chat is around the clock.
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Postby Pepe » Wed Jan 20, 2010 2:35 pm

acol wrote:I am still working out strategy regarding travel/flights/accommodation/duration of stay etc.


Here you are the basics of Katowice:

http://www.inyourpocket.com/poland/Katowice

Regards,
María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.
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Postby pgm1 » Wed Jan 20, 2010 2:45 pm

Hi Pepe

Thanks for posting the name of a travel manual i was looking for one


thanks Pam :)
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Dr. Simka's contact details

Postby Hef » Wed Jan 20, 2010 7:15 pm

Hi,

Would anyone have an email address and/or contact number to Dr. Simka please?

Thank you

Hef
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Simka

Postby fiddler » Wed Jan 20, 2010 7:20 pm

Hef, his e-mail is:

mariansimka@poczta.onet.pl

...Ted
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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Re: Simka

Postby Hef » Wed Jan 20, 2010 8:43 pm

fiddler wrote:Hef, his e-mail is:

mariansimka@poczta.onet.pl

...Ted


Thank you Ted!

Cheers

Hef
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Postby acol » Fri Jan 22, 2010 5:35 am

Hi Pepe

Many thanks for that link.
Nigel
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Postby Maestro » Wed Jan 27, 2010 3:34 pm

Hello I am one of the nine people who received e-mail Subject: MS Treatment from Dr Simka on Dec 11 '09, saying ...The estimated time of the procedure is March 2010...
:D

acol contacted me just before he got his date.

Now to let ThisIsMS people that received the letter with the date:
...Doppler: 10th March; MRV: 10th March; operation: 11th March... :!:

Untill now I was just reading the post, not active, just passive and gathering all good information. Thank you all! I will update you...

V.




[/b]
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Postby pgm1 » Wed Jan 27, 2010 3:52 pm

Hi Maestro

Congratulation and glad you joined
My dates are March 22 and 23 i can hardly wait

Pam :)
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Postby acol » Thu Jan 28, 2010 3:56 am

Hi Maestro

Very pleased for you. You will have been and gone before I get there!
Nigel
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Postby Maestro » Thu Jan 28, 2010 10:22 am

Thank you Pam and acol,
At first, when I saw your dates I was thinking maybe April?
But it is as Dr Simka said in Decemer last year: March!
This is great! :D
V.
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Postby Richardk » Thu Jan 28, 2010 3:47 pm

I received a letter from Dr S's office outlining a change to the previous arrangement...see below:

Katowice, 21 January 2010

Dear Sirs,

We kindly inform you that due to increased costs of medical insurance and costs of clinical researches, we have to change the price of Liberation Treatment (CCSVI) method. New price also includes transportation and part of accommodation costs during your stay in Poland. We have decided to cover non-medical areas with our assistance to increase performance of the Clinic and to shorten the waiting time for the procedure.

Since 25th January 2010 the costs will amount to:
 6 900 euro : angioplasty with stenting – 1 stent (if more than one stent is placed, each additional stent costs 500 euro)
 6 400 euro : angioplasty

The price includes:
 Vascular surgeon/angiologist consultation
 Color Doppler ultrasound examination
 MRI examination
 Endovascular procedure (angioplasty or stenting)
 introductory consultation with the leading doctor
 5-night stay in 4-star hotel (breakfast included)
 Transportation to the examination and procedure facilities (Doppler, MRI, surgery)
 Transportation from/to Pyrzowice (Katowice) or Balice (Kraków) Airport
 EuroMedic personnel assist during your stay
 telephone hot-line assistance

 If for medical reasons angioplasty or stenting cannot be performed the package price amounts to:
 2 700 euro : Full diagnostics with phlebography
1 800 euro : color Doppler ultrasound and MRI examination


Best regards,

Tomasz Ludyga
Director of EuroMedic
Specialist Clinics


It appears that Dr S is leaving the admin side of the treatment to others. There now is a Patient coordinator, Marta Cyba, and I believe her email is:
info@euromedicpoland.com Note that price now includes 5 nights hotel, transport to and from both Katowice and Krakow airports to the hotel, as well as to the medical facilities. Price has increased. I will be going Feb 10, so will give my observations on how things work out.

Richard
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testing

Postby GREMLIN » Thu Jan 28, 2010 4:04 pm

:) I am so excited to hear that everyone is taking all of this testing into their own hands and getting the help they need. I am writing to you from Toronto Canada and things here are moving slowly, but were are researching everything and pushing for things to move quicker. Dr. Zamboni is doing a workshop in Hamilton for the medical community the first weekend of February 2010. Keeping our fingers crossed that this helps speed things up.

Good luck to everyone.
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