Boogshine wrote:I haven't heard any connections drawn yet, but maybe I haven't read enough. I've only been diagnosed about 20 months now.
I've had noticeable terrible circulation in my fingers and toes since I was 15 (Reynaud's), but also get flushed in the face, overheated easily. These phenomena would lead me to believe I probably have CCSVI and ought to get myself a Doppler. Anyone heard that connection made?
There's been a giant discussion about Raynaud's that was moved from the CCSVI Forum to the General Forum, since it's common through the whole population, and not just in MS patients.
Here's the link:
As for the flushing/overheating, CCSVI is such a new theory that they're only beginning to figure out the "connections" between MS and CCSVI and how to identify it in a patient, even with the tests that are available.
Read all you can here about testing, but keep in mind that CCSVI is about a brand new approach and the "facts" haven't been established with certainty yet anyway. Good luck and keep reading as the new information unfolds.