This Is MS Multiple Sclerosis Community: Knowledge & Support

I kept the subject generic to allow posters to put links to any new CCSVI coverage in the Canadian media.

Here's one today from Global TV (posted online):

http://news.globaltv.com/health/Cause+c ... story.html

They are a distinct media group from CTV, the network that broke the CCSVI story in Canada, and CBC, the other broadcast network that covered this previously.

Global is also part of the group behind all of Canada's major newspapers.

I will watch to see if Global does a broadcast version of this story.

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National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tinyurl.com/44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tinyurl.com/3wzmkmg</a> ~Facebook</strong><br />

"Researchers are able to respond to new information with unprecedented speed, according to Tony Traboulsee, director of the MS Clinic at UBC Hospital.

UBC is embarking on a study that will examine the association between MS and vascular anomalies that interfere with the brain's blood supply. An Italian researcher published his findings on the link late in November.

When Traboulsee saw a three-year-old apparently presenting with MS, the brain trust met to ask questions. Can a three-year-old have MS? If so is it different from adult MS?

"What triggers the disease is unknown and that makes it very tricky," said Brain Research Centre researcher Helen Tremlett. "Even when people develop symptoms there is quite a good possibility that they have already had the disease for a number of years."
Onset of adult MS could occur in childhood or even in the womb.
The study of pediatric MS patients holds hope that the trigger or even the means of attack will be more evident."


Thanks for the article happy_canuck. I hope they really do respond with unprecedented speed! And I would like to know if they will be including the 3 year old as well as the rest of the pediatric MS patients in the vascular anomalies study. Would be good to compare their results against Dr. Zamboni’s pediatric MS patient findings and see if there are similarities.

Lora

An italian researcher.... couldn't they tell the name of Dr. Paolo Zamboni? He deserves it!

Was this article from Sudbury Star already mentioned here?

http://www.thesudburystar.com/ArticleDi ... ?e=2247116

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"There is only one good, knowledge, and one evil, ignorance." Socrates

A woman's story about getting scanned (twice) in Vancouver, who plans to be one of the first to seek treatment in India:

http://www.lacombeglobe.com/ArticleDisp ... ?e=2249583

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National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tinyurl.com/44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tinyurl.com/3wzmkmg</a> ~Facebook</strong><br />

Summary article posted at suite101.com:

http://autoimmunedisease.suite101.com/a ... ency_in_ms

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National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tinyurl.com/44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tinyurl.com/3wzmkmg</a> ~Facebook</strong><br />

Just a comment on the article by the Lacombe Globe (link posted by happy_canuck) - Yasmeen Sayeed, of Medical Tourism, is not a doctor. She does have a B.Sc., and worked for many years for the Vancouver Coastal Health Authority, but has no medical certification.

I think that she is wonderful, and dedicated, none-the-less.

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My name is not really Johnson. MSed up since 1993

From the first article, it looks like the scan has to be done in Canada and Indian hospital will only do the surgery. Will the Indian hospital not repeat the scan?

I think that having the scan done here to conclude stenosis is a thought to save a trip to India if it is not CCSVI. But, the scans can be sent to India as easily as I write this now, and could be used, I would think. A venogram would be the conclusion, and "any" vein doc worth their salt would know what to do with an obstruction (I write that with caveat!).

My understanding is that Yasmeen Sayeed was asking for a release to send the images (from False Creek) to India, prior to scheduling flights, accommodations, and surgeries.

Apollo Hospital, in Channai, is rated higher than most American, or Canadian hospitals by the WHO (whatever that is worth these days). Their doctors are trained at Harvard, Johns Hopkins, Guy's/St. Barts, etc., and are top drawer.

I have a radiology connection (by proxy, and nothing definite yet) who is worried about his future because the trend is diagnostics going offshore to India (from Canada), and ultimately, the surgeries will follow. He says that it is already happening.

Have you called technical customer service lately? Say hello to Pradeep, the software engineer, for me

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My name is not really Johnson. MSed up since 1993

I don't know if you figured out but I am also from Chennai, though I don't have any contacts with Apollo here.

I really don't know if the medical work is moving here but I have had couple of interactions with foreign patients over here and I have always got the impression that the high cost and long wait line is the reason why they are taking a trip to India. In some cases, the treatment is not available in the native country (like some Africa, Pakistan etc.)