annad wrote:Keep up the 'fight'! Shiraz, was this just a 'regular' ultrasound machine they used? I thought Dr. Zamboni had a specific one made just to scan for this.
youbetcha wrote:Hi Shiraz,
Thanks for sharing that info. I was down at St. Mike's MS clinic on Dec. 22nd and I got a very negative response in regards to CCSVI and was told "don't hold your breath over this".
Anyhow, what's important is that we (those who have ms) remain positive and keep looking for vascular surgeons/interventional radiologists who WILL help us.
All the best....
esta wrote:Hi Shiraz
your ultrasound technologist sounds remarkable. Lucky you! Most of us have tried in vain throughout our country. Many questions, one is the cat scan, but you're further than 99% of us so if we have to run circles to be liberated what the heck/
fiddler wrote:Hi Shiraz,
I'm happy for you and to hear what is happening in Barrie, but I think that it is REALLY important to get some quoted statistics from the radiology department regarding how many MS patients they have tested for CCSVI and how many have been found with it. "Up until January 3rd, 2010, thirty-eight MS patients have been tested for CCSVI by Doppler ultrasound in the XXXX hospital radiology department and 36 have been found the condition" is much stronger than "A radiology technician told me that about 40 MS patients have been tested and all were found to have occlusions" because the latter sounds more like hearsay that can be easily dismissed.
I think that this is important for all MSers (we could take this to doctors, neuros, media), but perhaps especially for our friends in the US who seem to be battling a semi-hostile MS society and a disinterested media. A few hard facts would be harder to refute and easier to build stories around.
alby wrote:hi shiraz,
Where in California you're going to go? And for what? i live in California and other than Dr. Dake who isn't doing anything for the time being, I see no interest from medical community.
Even if you want an ultrasound here and are willing to pay, you can't without a prescription, I was told.
Users browsing this forum: No registered users