I clicked the link above, and read about all the amazing new drug trials and such in the pipeline. Yawn. I was wondering at the lack of mention of CCSVI, and clicked on their research link. They have a fairly good summary, with links, of Zamboni's hypothesis. I thought that their coverage was very reasonable. I include this quote:
Q: What is the National MS Society’s view of CCSVI?
A: In trying to find the cause and more effective treatments for a disease as complex and unpredictable as multiple sclerosis, the Society is steadfast in its commitment to pursue all promising avenues of research that can lead to improved treatments and ultimately, a cure. It is important for researchers to think outside the box and we believe Dr. Zamboni has done this. His hypothesis is a path that must be more fully explored and Dr. Zamboni himself has stated that additional research is essential to evaluate it.
They got caught with their pants down, like just about everyone involved, but they are pulling them up - unlike my GP, neuro, etc. We spend countless hours reading every new posted data, while they are féted by drug companies and Bentley salesmen. None of them have a clue, but our outcry has made them notice. That Pipeline page is what is in the pipeline. They have not yet gone through the funding process with CCSVI, but are accelerating it.
I'm not defending the MS societies, neuros, etc., but I am not depending upon them either. The MS society did zip for cheerleader's husband, as far as I know. She did the research, and tracked down diagnosis and treatment where she lives (more or less), and admonishes everyone to do likewise. A lot of us find that to be more difficult than grocery shopping - which is a huge effort, but others can, and are pushing forward - with results.
If everyone withdrew funding to the Useless Ones, and contributed directly to the studies into CCSVI, we would get to where we want to be much faster. The fat cats can enjoy getting lean.