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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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BamBAM
PostPosted: Tue Jan 05, 2010 4:15 pm 
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Hi All

Just finished my appointment at U.S.C, Talked to them about Dr Zamboni and CCSVI, The say they have an application in for a grant to start a clinical trial, Fingers Crossed!!! My doctor said they have had tons of M.S patients bring it up to them, And they are very open to the ideal, Score 1 for U.S.C
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cheerleader
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PostPosted: Tue Jan 05, 2010 4:18 pm 
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nice news, bam...
I had heard otherwise. Just wondering, was this the neurological department or the vascular dept?
thanks,
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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ozarkcanoer
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PostPosted: Tue Jan 05, 2010 4:18 pm 
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Bam !!!! I keep coming here for good news and you just delivered some more. Thanks !!!!

ozarkcanoer
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bestadmom
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PostPosted: Tue Jan 05, 2010 5:04 pm 
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Bam, great news. Thanks for sharing it. I find it interesting that they told you how many patients brought it to them. That's what it takes. Everyone, keep pushing - our efforts are being noticed.
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BamBAM
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PostPosted: Tue Jan 05, 2010 5:15 pm 
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Hi all

my appointment was at the LESLEE P WEINER, MS clinic at U.S.C,
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cheerleader
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PostPosted: Tue Jan 05, 2010 5:23 pm 
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wow...this counters a report from a friend of mine and Jeff's that was strongly discouraged into looking into CCSVI by Dr. Weiner just before Christmas. She is going to Poland to see Dr. Simka. I'm hoping this is a change of heart for Dr. Weiner...any other of his patients want to weigh in?
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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kenneb9
 Post subject: usc Dr Weiner
PostPosted: Thu Jan 07, 2010 2:52 pm 
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Got an email from Dr. Weiner USC today quote, "We are not doing the CCSVI. I think the study and the concept needs further study
I wish you wife well."
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BamBAM
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PostPosted: Thu Jan 07, 2010 7:15 pm 
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Hi all,

I am simply telling you all what my neuro told me face to face, USC has a petition for a grant in to study CCSVI and that they were very interested in it, I dont know do you think maybe she lied to me and other patients in order for us to stop asking about it ???
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cheerleader
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PostPosted: Thu Jan 07, 2010 7:20 pm 
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BamBAM wrote:
Hi all,

I am simply telling you all what my neuro told me face to face, USC has a petition for a grant in to study CCSVI and that they were very interested in it, I dont know do you think maybe she lied to me and other patients in order for us to stop asking about it ???



Just find it odd that the head of neurology is not behind it, but the rest of his staff is? Dr. Weiner is a man, and the neuro dept. is named after him at USC...
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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kenneb9
 Post subject: usc
PostPosted: Thu Jan 07, 2010 7:50 pm 
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I emailed him last night because of this thread and got the email back this morning..possibly he just doesn't want a lot of inquiries going directly to him and maybe wants his institution to do more research. I just reported his email don't know anymore.
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Rose2
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PostPosted: Thu Jan 07, 2010 11:09 pm 
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I am sorry and with all due respect, but did his mother really name him
LESLEE P WEINER ??????
sorry. NO disrespect intended, but sometimes I just crack me up. Rose
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Johnson
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PostPosted: Thu Jan 07, 2010 11:29 pm 
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Rose2 wrote:
I am sorry and with all due respect, but did his mother really name him
LESLEE P WEINER ??????
sorry. NO disrespect intended, but sometimes I just crack me up. Rose


Rose,

You crack me up too!

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My name is not really Johnson. MSed up since 1993
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jess
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PostPosted: Fri Jan 08, 2010 8:44 am 
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i mean come on look at what they call you JOHNSON :lol: :lol: :lol:
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jay123
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PostPosted: Fri Jan 08, 2010 9:38 am 
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I've got some nice big Johnson t-shirts stuffed away somewhere!
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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