Clinical trials - corelating MS with CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Clinical trials - corelating MS with CCSVI

Postby sbr487 » Wed Jan 06, 2010 6:49 am

Any of you think that trying to tie MS with CCSVI is the right approach?
What if CCSVI is the root cause of not just MS but other neuro diseases also?
What if someone has venous insufficiency but is in early stage to be diagnosed as MS?

Before my gall bladder was removed there were 2 classes of Dr I talked to
One that did not want me to undergo surgery (old school) saying that if it is not broken why should it be fixed.
Two that wanted me to have surgery since gall bladders can sometimes lead to cancer.

At the end of the day, it was my call to go for surgery.

Similarly, if someone has venous insufficiency why should he be diagnosed to have MS before he can get treated.
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Postby LR1234 » Wed Jan 06, 2010 7:05 am

I understand what you mean, and you should not wait to be diagnosed with MS before going to be treated. This is the big problem though....If you have all the symptoms of MS (like I did for 14 years) and are not given a firm diagnosis or even a probable MS diagnosis would that put you into the "control" catergory. I hope that when testing patients in these trials they make sure 100% that they do not have ANY symptoms that sound like MS.

I eventually got my solid MS diangosis but I could have been considered a control for 14 years despite having symptoms of MS.
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