Have you looked into UT Southwestern?http://www.swmed.vasculardomain.com/
of Baylor? Maybe call the interventional radiology depts and see if they're interested?
Yes, UTSW is hopefully where we'll be getting the imaging done, I've already been in contact with them and they do have the 3d MRV imaging capabilities and are happy to execute the script by the GP. My hesitation at this point is the desire to make certain the person doing the imaging and reviewing the results knows what to look for and is familiar with the MRV protocols being used elsewhere. I'm pretty confident we'll be able to make that happen but it may take a little longer than just making an appointment for imaging....worth the wait though in my opinion to have this test in the hands of someone at least familiar with what we're looking for.
Very excited to be making this progress!! Hoping my posting these updates helps others in navigating the same roadblocks I'm seeing. Had to cut Courtney's food for the first time the other night because her hands weren't working right, I'm so motivated to get her better!