I have been lurking for a while, and enjoying all the info. about CCSVI.
I am beginning to see all my symptoms in light of CCSVI now.
I only suspect that I have low blood pressure at times. I have become disoriented, dizzy, weak, nauseous, and had a few brief "black-outs". In the hospital, I do remember the nurse commenting a few times that my blood pressure was 50 over something.
However, the high blood pressure is what concerns me. At times, I will be laying in bed, and begin to feel my heart race. I got into the habit of standing on the treadmill, without it running, just so I could check my heart rate. It shoots up to 180 bpm or more easy, and I was laying in bed! I started checking my blood pressure regularly over a year ago, because I noticed I was taking very deep breaths like clock work. This was during an MS attack. The symptom has lessened, but I still do it today. It's like my body needs extra oxygen, and it just pulls in the biggest breath possible. When if first started, I was afraid to go to sleep it worried me so much. I've kinda gotten used to it, but I know it's not normal or healthy.
My PCP ordered a 24 hr. holter monitor to monitor my heart, but insurance wouldn't approve it. I do get uncomfortable pricks in my heart. Once, it was really painful, but mostly it's just bothersome. I really think it's all related. CCSVI makes sense!