blood pressure high or low Is there a relationship to CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby magoo » Thu Jan 07, 2010 5:29 pm

Mine is very low also. At one point I was sent to a cardiologist and because my heart was fine he put me on a high salt diet. I loved it and it did help my dizziness.
It is still low now, but not too low. I don't add extra salt to my diet any longer. I haven't had dizzy spells or black-outs since surgery.
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby Mechanicallyinclined » Thu Jan 07, 2010 6:04 pm

Interesting. I could understand what Cheer means in saying if you had higher blood pressure it would probably affect your CCSVI condition more, especially if you have more stenosis. Oh look I didn't call it MS lol
I'd be interested to hear from more people regarding their blood pressure . Even if it's high that could be from another medical condition.
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Postby cheerleader » Thu Jan 07, 2010 6:17 pm

Mechanicallyinclined wrote:Interesting. I could understand what Cheer means in saying if you had higher blood pressure it would probably affect your CCSVI condition more, especially if you have more stenosis. Oh look I didn't call it MS lol
I'd be interested to hear from more people regarding their blood pressure . Even if it's high that could be from another medical condition.


MI- by out of range...I actually meant high or low BP. Low might mean more dizziness (like Magoo), even less oxygen, whereas high would mean more pressure, maybe more endothelial disruption and iron deposition. The thing is, we just don't know what it all means right now. Like I said, Jeff's BP was and is fabulous 110/80....but he still had severe stenosis and reflux. More research!
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Sharon » Thu Jan 07, 2010 9:42 pm

Yep, mine has always been low. As you get older, supposedly your blood pressure goes up. I am 66 - mine is about the same as Jeff's. I do not not take any medication for blood pressure. Took it the other day after strength training - 105/79 -- I was a little concerned about the bottom number (diastolic) -- will recheck tomorrow. Would like to see it in the low 70 range.

Sharon
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Postby ndwannabe » Thu Jan 07, 2010 9:46 pm

My BP was always "good enough for a cosmonaut" 120-80 (sometimes 70 for diastole). Still is.
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Postby Vonna » Thu Jan 07, 2010 11:23 pm

Hey everyone,
I have been lurking for a while, and enjoying all the info. about CCSVI.
I am beginning to see all my symptoms in light of CCSVI now.

I only suspect that I have low blood pressure at times. I have become disoriented, dizzy, weak, nauseous, and had a few brief "black-outs". In the hospital, I do remember the nurse commenting a few times that my blood pressure was 50 over something.

However, the high blood pressure is what concerns me. At times, I will be laying in bed, and begin to feel my heart race. I got into the habit of standing on the treadmill, without it running, just so I could check my heart rate. It shoots up to 180 bpm or more easy, and I was laying in bed! I started checking my blood pressure regularly over a year ago, because I noticed I was taking very deep breaths like clock work. This was during an MS attack. The symptom has lessened, but I still do it today. It's like my body needs extra oxygen, and it just pulls in the biggest breath possible. When if first started, I was afraid to go to sleep it worried me so much. I've kinda gotten used to it, but I know it's not normal or healthy.

My PCP ordered a 24 hr. holter monitor to monitor my heart, but insurance wouldn't approve it. I do get uncomfortable pricks in my heart. Once, it was really painful, but mostly it's just bothersome. I really think it's all related. CCSVI makes sense!
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Postby Mechanicallyinclined » Thu Jan 07, 2010 11:31 pm

pay attention to Cheerleaders posts in this forum. I was probably misleading in the way I was understanding any relationship possible between CCSVI and blood pressure
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Postby gibbledygook » Sat Jan 09, 2010 8:07 am

The high incidence of women with MS might be something to do with the fact that women tend to have low blood pressure...
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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Postby lyndacarol » Sat Jan 09, 2010 1:17 pm

Vonna--Has your PCP checked out your thyroid hormones (TSH, free T3, free T4, reverse T3)? Thyroid problems have far-reaching effects.
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