CCSVI in Bulgaria

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Insurance Thoughts?

Postby SamSam » Mon Aug 09, 2010 8:30 pm

I'm so happy to find you all blogging about this here!
This is my first post to the forum - I'm scheduled for the procedure at the beginning of October.

I see I need to be insured for the procedure. What insurance packages have people bought? I understand insurance for the procedure is expensive and perhaps best bought separate from general medical travel insurance?

Any and all help Greatly appreciated...

Sam
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Re: Insurance Thoughts?

Postby devine » Tue Aug 10, 2010 10:29 am

SamSam wrote:I'm so happy to find you all blogging about this here!
This is my first post to the forum - I'm scheduled for the procedure at the beginning of October.

I see I need to be insured for the procedure. What insurance packages have people bought? I understand insurance for the procedure is expensive and perhaps best bought separate from general medical travel insurance?

Any and all help Greatly appreciated...

Sam


Hi Sam welcome aboard to your new journey....

I will be back in bulgaria this October myself. As for insurance I actually didn`t buy any as I have medical out of country insurance threw my er`s medical group insurance.. Maybe want to check with them...

Good luck,
Donna
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Postby papa » Tue Aug 10, 2010 6:09 pm

hey everyone,

I went to see a new neuro today and didn't bother to tell him I'm having the procedure done. He only suggested in patient rehab therapy but as he was talking I was shaking my head NO!! What good would this do? It was an OK visit, but he knew he couldn't help much and nothing new in the line of medication. I wanted to tell him my good news about ccsvi procedure but knew it was best not to!! I'm thankful to have an understanding GP- she is great!! She saw all the news of ccsvi and thought of me and felt I would be the one to have this done.

See some of you in Sofia in Sept.
Papa :wink:
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ccsvi

Postby ven » Thu Aug 12, 2010 1:48 am

hello

am going back to Sofia in september hope this time for good:)

Does anyone know pls how is the weather there and where i can go to far to make some shopping as gifts...

thanks for your help
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Hi SamSam

Postby LivabirdsHubbie » Thu Aug 12, 2010 4:25 am

When are you going to be in Bulgaria, I am taking my wife (livabird) on October 6th until October 14th, maybe we will bump into each other.
We have been to Poland in April, but unfortunatley it has not worked this time, hoping for better results in Bulgaria.
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Re: ccsvi

Postby RobSandra » Thu Aug 12, 2010 6:37 pm

ven wrote:hello

am going back to Sofia in september hope this time for good:)

Does anyone know pls how is the weather there and where i can go to far to make some shopping as gifts...

thanks for your help


We just got back from Sofia. The only place to get souveniers like t-shirts, coffee mugs, etc... is by the vendors/booths set up around the large cathedral. There is not too many true souvenier places as the malls dont really have that sort of stuff. If staying at the Greenwood, just ask the conceirge for directions. Its about a 7-8 leva ($5 CDN) taxi from hotel or hospital there.
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Re: ccsvi

Postby ven » Fri Aug 13, 2010 1:01 pm

RobSandra wrote:
ven wrote:hello
hey again thanks a lot for ur help\
how are you doin after ccsvi


am going back to Sofia in september hope this time for good:)

Does anyone know pls how is the weather there and where i can go to far to make some shopping as gifts...

thanks for your help


We just got back from Sofia. The only place to get souveniers like t-shirts, coffee mugs, etc... is by the vendors/booths set up around the large cathedral. There is not too many true souvenier places as the malls dont really have that sort of stuff. If staying at the Greenwood, just ask the conceirge for directions. Its about a 7-8 leva ($5 CDN) taxi from hotel or hospital there.
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Re: Hi SamSam

Postby ven » Sat Aug 14, 2010 7:22 am

LivabirdsHubbie wrote:When are you going to be in Bulgaria, I am taking my wife (livabird) on October 6th until October 14th, maybe we will bump into each other.
We have been to Poland in April, but unfortunatley it has not worked this time, hoping for better results in Bulgaria.


hey
am going to sofia in september even me its my 2nd time there
i was there 2/months ago and it didnt work and am goign back hope this time for good?
if u would like to know something about d hos in sofia feel free to ask..
if u like send inbox and i will give u my email
:lol: :o
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Re: Hi SamSam

Postby SamSam » Sat Aug 14, 2010 9:29 pm

LivabirdsHubbie wrote:When are you going to be in Bulgaria, I am taking my wife (livabird) on October 6th until October 14th, maybe we will bump into each other.
We have been to Poland in April, but unfortunatley it has not worked this time, hoping for better results in Bulgaria.


Hi LivabirdsHubbie -- I do like your nickname :)

I arrive October 6 as well, will be with my cousin and am planning to stay at the Greenville. I'm sorry to hear Poland didn't work -- would you feel comfortable writing about why? I'm very interested in hearing how people are fairing with the procedure. If you're not comfortable writing on the site, we could swap emails.... Thank you.

SamSam.
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Re: Insurance?

Postby SamSam » Sat Aug 14, 2010 10:21 pm

[/quote]

Donna -- you wrote:
"Hi Sam welcome aboard to your new journey....

I will be back in bulgaria this October myself. As for insurance I actually didn`t buy any as I have medical out of country insurance threw my er`s medical group insurance.. Maybe want to check with them...

Good luck,
Donna"

THANKS! -- I think I misread the confirmation email and had the idea that a special kind of insurance was REQUIRED ... and I couldn't figure out how to get it (!) ... so I started to worry....

... important new journey and all, wouldn't want to stumble on first hurdle...
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postcards

Postby Kar » Tue Aug 17, 2010 10:28 pm

A woman I've newly met from Victoria is looking forward to her trip to Sophia in September. She doesn't use this site,so I said I'd add her idea. She plans to bring a postcard of Victoria and put it in the floor lounge (they call it the 'Winter Garden" - a nice sunny room. She thought it would be fun if all Canadians brought a postcard from their hometown and put it on a bulletin board in the lounge. A nice idea, I think(:

To those who have been, here's a question: did you get your cd of the procedure to work when you got it home? I know that mine and two others did not work. Frustrating as I have a doctor who has requested a copy of it.

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Re: postcards

Postby ven » Wed Aug 18, 2010 12:15 am

Kar wrote:A woman I've newly met from Victoria is looking forward to her trip to Sophia in September. She doesn't use this site,so I said I'd add her idea. She plans to bring a postcard of Victoria and put it in the floor lounge (they call it the 'Winter Garden" - a nice sunny room. She thought it would be fun if all Canadians brought a postcard from their hometown and put it on a bulletin board in the lounge. A nice idea, I think(:

To those who have been, here's a question: did you get your cd of the procedure to work when you got it home? I know that mine and two others did not work. Frustrating as I have a doctor who has requested a copy of it.

Kar

hey
how are you doing?
my cd dont wrk neither..did u do ballon or stent am going again for stent?
tks
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Re: Hi SamSam

Postby LivabirdsHubbie » Wed Aug 18, 2010 3:32 am

Hi SamSam, will be great meeting up with you.
The first month Liva had good results, the normal warm feet etc.. no pain, but over time it came back, we think there are a couple of reasons for this, possible restenosis of the right jugular, maybe the stent in the left is blocked, but we think more likely it is the azygos vein which poland did not do anything with. With PPMS we have read that it is generally the azygos which is affected the most. Prof Gosdinski understands this and will pay close attention to this, so fingers crossed, getting close now
All the best and we can keep chatting until the 6th when we can meet in person

SamSam wrote:
LivabirdsHubbie wrote:When are you going to be in Bulgaria, I am taking my wife (livabird) on October 6th until October 14th, maybe we will bump into each other.
We have been to Poland in April, but unfortunatley it has not worked this time, hoping for better results in Bulgaria.


Hi LivabirdsHubbie -- I do like your nickname :)

I arrive October 6 as well, will be with my cousin and am planning to stay at the Greenville. I'm sorry to hear Poland didn't work -- would you feel comfortable writing about why? I'm very interested in hearing how people are fairing with the procedure. If you're not comfortable writing on the site, we could swap emails.... Thank you.

SamSam.
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Re: postcards

Postby Taps » Wed Aug 18, 2010 4:44 am

Kar wrote:A woman I've newly met from Victoria is looking forward to her trip to Sophia in September. She doesn't use this site,so I said I'd add her idea. She plans to bring a postcard of Victoria and put it in the floor lounge (they call it the 'Winter Garden" - a nice sunny room. She thought it would be fun if all Canadians brought a postcard from their hometown and put it on a bulletin board in the lounge. A nice idea, I think(:

To those who have been, here's a question: did you get your cd of the procedure to work when you got it home? I know that mine and two others did not work. Frustrating as I have a doctor who has requested a copy of it.

Kar


Hi Kar,

The CD's did indeed work for me.

I received 3 discs btw. Left Jugular, Right Jugular, and Azygos....
Last edited by Taps on Wed Aug 18, 2010 5:42 am, edited 2 times in total.
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Postby colapesce » Wed Aug 18, 2010 5:32 am

re. cds... mine won't work on a mac but does work on a pc. I don't have a pc though! I, too, will be back in October for follow-up/second attempt at procedure.
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