CCSVI in Bulgaria

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: reply from Dr. Grozdinski

Postby ErikaSlovakia » Sun Feb 21, 2010 1:01 am

AnnaP wrote:Hi everyone,

I got an email from Dr. Gozdiniski (Bulgaria) I'm on the list for June 2010, you can imagine my happiness :D :D :D. He also wrote; more details to follow in March.

Any opinions, to this??? Please share.

Thanks,
Anna

Hi Anna!
Congratulations! Do not worry about Bulgaria. It will be fine.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby Luvsadonut » Sun Feb 21, 2010 1:56 am

Hi Anna
Good mews :)
When did you mail Dr Gozdiniski? I mailed
in December but still no reply, maybe I didn't
make myself clear in the mail I sent him.
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Postby AnnaP » Sun Feb 21, 2010 5:58 am

Hi Luvsadonut

I sent him an email beginning of Jan. I bascially gave up on him. Imagine my surprise yesterday, Saturday when I checked my emails and there was his...I cried (tears of happiness of course) couldn't believe my eyes, I read his email over and over, so happy :D :D :D :D :D.
I read in one of the forums that Dr. Grozdinski was starting the procedures in April only, it made sense to me why I didn't hear from him sooner.



Hi Erika,
Thanks for your wishes. I know you know what this means for MSer.
:D
Anna
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Postby NewHope » Sun Feb 21, 2010 1:35 pm

Hi Anna,

Congratulations for getting an appointment! I am also waiting to be contacted by someone (I have given my info to Buffalo, Albany, Georgetown, Poland, UK - two clinics). I am anxiously waiting to hear from someone from any of these places but at the same time I am concerned if I will make the right choice when someone contacts me because it seams like experience and training are so hugely important! For instance I read here about Ella, a girl that was treated by Dr Simka - her venous problem wouldn't have been located hadn't she gone to Dr Simka. As far as I know the two UK clinics that are about to begin offering CCSVI testing & treatment are waiting to get training. But then time is of essence too and is working against us. Anyway, as far as I know the doctors involved with CCSVI in Bulgaria are very good but do you know if they have received the proper training?

Thank you and good luck!

NewHope
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Postby costumenastional » Mon Feb 22, 2010 12:03 am

I got the mail too this morning. I am to go a bit sooner than June but i dont know...
My damn suspicious nature :)
I hope they know what exactly to look for as there are no details about their knowledge on the matter. But the hospital is well known as one of the best in Europe so i guess it will be a well organised thing...
I am gonna think it over until then.

Anyway, its only good to have an option and i am GRATEFUL.

Also, a bulgarian friend of mine told me that just recently a girl posted in a bulgarian forum that Prof.Grozdinksi diagnosed her with stenosis in both her jugs and he is sending her to Tokuda hospital for stent placement. So far its the only solid piece of evidence i got. But i suspect there are many others who have already been dxed in Sofia.
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Postby Vhoenecke » Mon Feb 22, 2010 2:46 pm

Sent an e-mail this afternoon. Looked up Bulgaria and I agree with Erika that it looks fine. We don't have a lot of choice so we must be the pioneers. When we have success the word will get out. I looked that the Bulgarian currency does well against the Canadian dollar. Maybe a little touring while I am there. All the best to you folks looking into treatment. Maybe we should organize going from Canada together. Something to think about. Large numbers on flights and hotels equal savings.

Val
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Postby youbetcha » Mon Feb 22, 2010 2:52 pm

I too sent an e-mail to them this afternoon. I don't want to wait around.
I look forward to hearing back from them....the thought of being "liberated" by this summer sounds great to me!
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Postby alanbrowne » Tue Feb 23, 2010 5:23 am

Hi All,
My first post here but thought I would comment.

I too received an email back from the Doctor in Bulgaria two weeks ago saying that I could be seen in May and that I would hear more in March.
Seems like they are starting to allocate patients to months.

Has anybody heard any more since the initial reply?

Alan
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Postby costumenastional » Tue Feb 23, 2010 5:39 am

It's not March yet Alan.

I can assure you, he will contact us soon with the details. 2 questions: How much? And the most important: are they up to it?

One could say that organizing the process in such a good hospital and under a well know doctor's supervision, leaves little room for errors. If i had to guess, i d say Prof. Grozdinksi has already diagnosed a number of MS patients but so did Buffalo that gave us the 55% figure. Are his diagnostic methods capable of spotting ANY kind of CCSVI? It's a risk we have to take as the stakes are so high...
Having said that, we have a couple of months at our disposal to think it over.
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Postby alanbrowne » Tue Feb 23, 2010 6:28 am

Hi,
I know it's not March yet....but one can hope :)
It's a good sign that people are being given different months though, at least they are registering the interest.
Given the current interest shown by the medical profession here in the UK, Bulgaria seems like a good bet to me.
Alan
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Dr. Grozdinski in Sophia, Bulgaria.

Postby pinksapphire » Tue Feb 23, 2010 10:14 am

I am on the waiting list for Dr. Grozdinski in April! I am very excited about this. Just waiting for the exact dates. I will keep you up to date as things happen :)
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Postby Vhoenecke » Tue Feb 23, 2010 11:23 am

I received an e-mail after just sending one on Sunday. I will find out the exact date in March but I'm on for June 2010. Hope this all happens. Can't wait to be liberated.
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Postby Vhoenecke » Wed Feb 24, 2010 10:13 am

I googled the hospital in Sofia, Bulgaria. It looks really good. New, 2007, and built by the Japanese. Hope it is better than their cars :lol: . Oops, not nice!
This is the first time since my diagnosis that I am excited. I never thought I would have that option of excitement again.
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Postby youbetcha » Fri Feb 26, 2010 1:24 pm

My e-mail states I'm on waiting list for June/July 2010.
I'm very very exicted! :D
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Postby Vhoenecke » Fri Feb 26, 2010 3:30 pm

I have to be honest that this is the first time I feel some hope since my diagnosis. I have such a good feeling about going there. I am so thankful that my brother will come with me. It will be good to have someone there to help me get to and from hosp and airport. I will get to see a different country. My dad died from this disease and his family is from Russia and Kiev Ukraine. I will love to see Eastern Europe. My dad always wanted to go there. Sorry, I ramble but I am so excited. 8)


Val
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