CCSVI in Bulgaria

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Emi-- » Fri Feb 26, 2010 4:09 pm

Hello everybody! I'm new in this forum!
I have also received the answer from Dr Grozdinski for the waiting llist: june/july 2010!I can't believe it! I was waiting from an answer of Dr Simka!
I would like to ask you if you already send the information requested in the e-mail(MS epicrisis traslate in english, ecc)? are they necessary to conferm the registration on the waiting list???
Thank you so much!
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Postby annad » Fri Feb 26, 2010 4:52 pm

Emi-- wrote:Hello everybody! I'm new in this forum!
I have also received the answer from Dr Grozdinski for the waiting llist: june/july 2010!I can't believe it! I was waiting from an answer of Dr Simka!
I would like to ask you if you already send the information requested in the e-mail(MS epicrisis traslate in english, ecc)? are they necessary to conferm the registration on the waiting list???
Thank you so much!



Hi Emi,
I just sent a quick confirmation of his response repeating my contact info. The other things I thought I'd wait until I had a date. What's an MS epicrisis? I think you need those things when you go.
a
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Postby Emi-- » Fri Feb 26, 2010 4:56 pm

Ok! thank you very much for your answer! I don't know what is the ms epicrisis, in the mail it was write:

"Requirements for the diagnostics and treatment of patients with CCSVI, which can be performed in Sofia, Bulgaria at a Bulgarian hospital, specializing in the field of cardio-vascular diseases, are as follows:
1. Patient should be diagnosed with MS through magnetic resonance imaging (MRI).
2. He or she should have his MS epicrisis translated into English.
3. Conclusions by a consulting neurologist should give the objective status of the present condition of the patient.
4. Patient should have a health insurance.
5. Upon hospitalization patient should give in writing his/her agreement to undergo the needed procedures for diagnostics and treatment."


but I don't know what does it mean!!
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Postby annad » Fri Feb 26, 2010 5:03 pm

Emi,
I'm sure someone will know what an epicrisis is . . I'm guessing your MS papers/history. I'll worry about that later on.
If not, we could contact the doctor directly.
a
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Postby Emi-- » Fri Feb 26, 2010 5:06 pm

ok!thank you so much Annad!!!
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Postby annad » Fri Feb 26, 2010 6:14 pm

Emi,

According to google:
Epicrisis means:

English translation: patient case summary (epicrisis)

Wonder how willing my neuro will be to give that up.
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Postby Vhoenecke » Fri Feb 26, 2010 6:20 pm

annad,
You will have an epps in your file and you have the right to all access to your file. Where do you live?
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Postby Vhoenecke » Fri Feb 26, 2010 6:21 pm

oops I could have looked. You live in Ont., all you have to do is ask. That info is yours. Be well, your GP may have that information from a report sent to him/her from the neuro.
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Postby youbetcha » Fri Feb 26, 2010 6:26 pm

Vhoenecke wrote:I have to be honest that this is the first time I feel some hope since my diagnosis. I have such a good feeling about going there. I am so thankful that my brother will come with me. It will be good to have someone there to help me get to and from hosp and airport. I will get to see a different country. My dad died from this disease and his family is from Russia and Kiev Ukraine. I will love to see Eastern Europe. My dad always wanted to go there. Sorry, I ramble but I am so excited. 8)


Val


Ramble away! It's natural to be excited especially when you feel like you're not getting anywhere with the doctors in your own town. It's great that your brother will go with you (gotta love family). :)
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Postby Vhoenecke » Fri Feb 26, 2010 6:43 pm

Thanks so much youbetcha, I have a young family 14 and 10 so my husband will stay home. He also farms and June is his busy time. Take care and thanks for the encouragement.

Val
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Postby livabird » Sat Feb 27, 2010 3:38 am

I AM SO EXCITED. I WAS ALMOST GIVING UP. I HAVE PROGRESSED SO QUICKLY AND FELT HOPELESS. NOW I AM GOING TO BULGARIA IN JUNE/JULY. WE ONLY EMAILED YESTERDAY. THE HOSPITAL LOOKS AMAZING. FAIRLY NEW AND JAPANESE BUILT. AT LEASY I HAVE A SMILE NOW. :)

HERE IS A LOOK OF ALL AVAILABLE CCSVI TREATMENT LOCATIONS.

http://multiplesclerosissurgery.com/whe ... ccsvi.html

MAY EVERYONE BE LIBERATED.

JAYNE
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Postby Jaguar » Sat Feb 27, 2010 4:42 am

I'll be going as well. I was ready to go to India but still don't have a confirmation. And March 2011 in Poland is just TOO far away.

Now the trick is to find out as much as possible about our good doctors in Bulgaria.
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Postby Daisy3 » Sat Feb 27, 2010 4:46 am

Where in India would you go? Have they performed this type of surgery before, or are they happy to do itwithout having done it before?

I know a little bit about India,and wondered..

Jaguar wrote:I'll be going as well. I was ready to go to India but still don't have a confirmation. And March 2011 in Poland is just TOO far away.

Now the trick is to find out as much as possible about our good doctors in Bulgaria.
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Postby Jaguar » Sat Feb 27, 2010 4:51 am

The Apollo Hospital is starting. I believe they have performed some surgeries, but there is a group of i think 16 Canadians going at the end of March. All booked through Surgical Tourism Canada. $24,000 Can$.

They are not taking any more reservations for future trips until after this group has returned to Canada.
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Postby livabird » Sat Feb 27, 2010 5:41 am

JAGUAR

THE TEAM CONSISTS OF

PROF GROZDINSKI, MD, PHD SPECIALIST IN PHLEBOLOGY AND ULTRASOUND
PROF. PETROV MD SPECIALIST CARDIOLOGY AND ENDOVASCULAR TREATMENT
ASS. PROF. STAIKOV MD SPECIALIST IN NEURSS. PROF. KIROVA MD SPECIALIST IN DIAGNOSTIC IMAGING AND CT
PROF. STAIKOV MD. SPECIALIST IN NEUROLOGY

I AM VERY SURE THEY HAVE MORE THAN ENOUGH EXPERTISE. I FEEL VERY CONFIDENT IF THE JAPANESE BUILT A HOSPITAL THERE THEY MUST HAVE BEEN IMPRESSED WITH THEIR MEDICAL COMMUNITY
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