This Is MS Multiple Sclerosis Community: Knowledge & Support

Look at Haacke's website!!
http://www.ms-mri.com/potential.php

Potential protocols -- this is amazing! Print them out -- share them with your docs.

Sharon

Oh, yeah....that's what we need! Thanks for the head's up, Sharon. Got a nice Haacke post on FB with his radio interview, too. I'm starting a Mark Haacke fan club soon, he's my kinda dreamy guy
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Yes, it is really great!
I have informed some slovak doctors.
Erika

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

And we thought this was going to be a quiet week in the CCSVI kingdom!!



Where do we sign up?

Here is the radio interview
http://www.cfra.com/chum_audio/Mark_Haacke_Jan05.mp3

Sharon

Hi Sharon & Joan,

This is indeed great news. I'm am so glad to hear and read about positive progress being made for CCSVI. $40,000 in one week! Candadian MS'ers rock!!!! I'm sure there were other $$'s from other countries, but we know it was the Canadian TV story that got the ball rolling!! I do believe though, that the lack of media coverage in the US is not all bad, it's giving the professionals a little more time to get the trials in order and the training started so that once the "fire storm" starts here in the US in earnest, we just might have some "go to facilities" in place.

This is exciting to watch the CCSVI story unfold, Joan you must be a proud mama indeed!! And I'm still on the edge of my seat waiting on the CBS special or news clip, or what ever they plan on broadcasting. This silence, like I said, maybe not all bad, but is still frustrating as all get out!!!

Respectfully excited,
Lora

It looks like these are the old papers which were up on his site in November... am i wrong?

thisisalex -

I had never seen these on his website, but I might have missed them. If you look at the "properties" of the files some say created 11/02/2009 -- so, it is possible they had been on the website before.

No matter, now that he has them back on the site - MS'rs can print them out and take to their docs.

Sharon

and here is a great paper, which is not linked on the site, but google found it:

http://www.ms-mri.com/docs/R21%20propos ... 0CCSVI.pdf

it is a detailed description of the MR protocol!

alex

Good find Alex

It looks to me like it is his study proposal which he is getting approved.

Golly Alex, you are a great Googler !!! Nothing is a secret on the internet, LOLOL. Thanks for posting this !!

ozarkcanoer

These papers have exact settings for the machine which is really good, this was probably what he was testing patients with recently to see how well they worked before publishing. Very very nice find!

Mark

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

When I downloaded the "R21 proposal on SWI and CCSVI" on Dec. 2nd, it was the only doc (related to mri protocols) available. It is modified on Nov. 3rd as are most of the other MRI protocol related files that now appear on Haacke's site.

Haacke's site updated today

In "Papers and talks" there is a more detailed presentation at the very bottom...

http://www.ms-mri.com/presentations.php

alex