Hey you guys!
I went and saw my neurologist yesterday. He was interested in how I was, but he didn't go overboard or anything. My neurological exam went well and I think I passed on all accounts. He said I had a lesser reflex in my right foot, but he seemed to blame it on my previously broken pelvis.
I told him I felt so great I did not want to re-start my copaxone. After he looked at my MRI from January he told me he didn't want me to take that medicine either. Guess why... I only have one lesion left in my brain! I have to say, that I have never been super clear on how many there were, but he went through the newest MRI comparing it to his 4/09 MRI and kept pointing out where they had disappeared from. It seems like he pointed to at least four, (I am being conservative here.) He said I was a pioneer, (I wonder if he knows that is Dr. Dake's word), and I shouldn't muddy the waters.
Treading carefully since he is a drug researcher, I asked if there was someone at Barrow's, like a nice neuro-radiologist, as has been suggested here, I could take this information to. He said I should bring it to him. His concerns were that 1.) he liked the doppler idea and wants to see the Buffalo results and 2.) how to get insurance companies to pay for this. He was surprised when I told him that the protocols were available and he asked for them. I reminded him that even a tech that wants to find the problem can't always find it without the proper training. I let him know that Dr. Dake and Alex know how to present this to the insurance companies. When I was leaving he asked me again to send him the doppler protocols. (Yes, I sent them that evening.)
Okay, so what I would like to know now is, how does my pre-procedure MRI compare to my post procedure MRI, with just the changes over the two month period. I will contact Alex and see how to get the reports on those and see what the doctors say. If you guys know how to get those without bothering Alex, let me know. I will let you know what I find out.
Sharon - I wish my one year would mesh with you guys! I would love to be there with you both.
Cece - I am sorry I didn't answer sooner. I did not ask the question about how would we know. I think Dr. Dake thinks these stents will last for life.
Rose - Did you ever get that room done?
Lisa - Hang in there buddy. I didn't get any new information about the study. I really wish there was something.
That's all for now. Take care everybody!
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back. Placebo schmebo.