Sharing Common Symptoms....

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby babiezuique » Mon Jan 11, 2010 12:51 pm

This is what i had and what i have now... What do you think of that?


1- otitis ( ear infections) in repetition in childhood
2- submandibular swollen gland all my life in the ledt side
3- alcool intolerance because my vagus nerve....makes me suffering and it is intolerable
4- optic neuritis in 1999 that took me all my vision from my right eye

Those... are really anatomically very near.... the intern jugular....

need you brilliant people to make sens of theses symptom`)
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Postby DanTheMan » Fri Jan 15, 2010 9:18 pm

I have a recurring stiff (inflamed) neck - seems to be a low grade lymph node inflammation. Comes and goes.

The classic MS symptoms have a lot in common with many toxic metal poisoning symptoms. I personally feel that MS is not a unique disease with a single cause, but rather a whole bunch of folks with chronic neurological symptoms. Possibly many causes - most of them environmental.

How many of us have silver fillings (amalgams)?
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Postby elyse_peace » Fri Jan 15, 2010 11:13 pm

Babiezuique, so sorry about your loss of vision. That must be very hard.
Dan, I have also had frequent swollen glands. Coincidentally, I have tested high for mercury, cadmium, and my lead numbers are off the chart -- literally. Hmmm. . .
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Postby babiezuique » Sat Jan 16, 2010 9:25 am

Elyse, do you do something special for this heavy meta intox?
and tell me, thoses tests you did, are they special tests or you can ask them to your GP?
barbara
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Postby elyse_peace » Sat Jan 16, 2010 9:38 pm

Barbara,
Hello. I got dx ms '98, doc sent me to a naturopathic doc, who suggested lots of supplements, did chelation with pills for 2 yrs. I stopped seeing that doc, went to another doc in '03 and was dx with an old case of neuro lyme disease, I've been addressing my ailments with nutrient supplements. went to see a lyme specialist to assess dx and treatment by my current lyme doc. the 2nd opinion doc asked for many tests, one being a 24-hour collection of urine, which was tested for heavy metals. that is how i got that information, not because I was wise enough to ask for it. my lyme disease doc gave me a regimen for chelating with things such as garlic pills and cilantro extract and more. I've been at it for 11 years. Currently, I am so sick of swallowing pills etc., I am not doing anything more than I absolutely must.
Peace & Wellness,
Elyse
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Postby DanTheMan » Sun Jan 17, 2010 8:57 am

Elyse,
Have you had any follow-up tests done to assess how your levels have responded to the therapy? If they are still too high, then you might suspect that the therapy isn't effective for your case. Maybe an adjustment is needed or perhaps you still have an exposure from some source. Of course, if your levels have come down since treatment, then you might consider eliminating this a cause. Since your heavy metals were high at one time (or still are), it's important to identify the source to prevent continued exposure.

Dan
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Postby AnnaP » Sun Jan 17, 2010 2:19 pm

Hi everyone,
I, too have low blood pressure, cold hands and ice cold feet. My feet get so cold that they tingle and I can't sleep. Every other day, I wake up with a stiff neck believing that I pulled a muscle, yet again.
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Postby jewelia » Sun Jan 17, 2010 7:28 pm

Hi all,

I also have low blood pressure and suffer from cold hands and feet. I used to think it was poor circulation...hmmm maybe it is after all! Sometimes I have difficulty getting and staying warm which is why we are heading down south for a holiday to D.R. to get some sunshine and Vitamin D and relief from the cold weather.

I have had difficulty breathing too... and the lack of power in my breath has caused me to speak softer - people have trouble hearing what I am saying sometimes. This hasn't helped my confidence level, as I also suffer from facial numbness and occasionally can not speak clearly. Sometimes, it's easier to not say anything! :)

My massage therapist always comments on how stiff my neck is, although I don't feel it - she says I have adjusted to it. I am finding this so interesting and while I'm not complaining, maybe it is a good thing to share our common symptoms (these are only some of them) and how it fits into the CCSVI theory.

LOVEPEACEHEAL,
Julia
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sharing common symptoms

Postby elyse_peace » Mon Jan 18, 2010 10:59 pm

Hi everybody,
Dan,
Thanks for your suggestions. It’s a complex problem in my case and I hope I can solve it in time.
Anna,
I also find icy feet make sleeping difficult.
You refer to your feet tingling, and I wonder if it if the same feeling that I have. To me it feels like there is voltage running through the soles of my feet.
Julia,
I also have a hard time getting and staying warm, but have an even worse time if I become too warm. That knocks me out.
I do not have your problems with breathing and facial numbness, but I do also have a problem projecting my voice.
I’m so glad you see a massage therapist. It is important for things like circulation. I am so amazed that you do not feel the stiffness in your neck. If I wrote my autobiography, I’d have to call it Oh, my Lord, my neck!
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Postby Perky » Fri Jan 22, 2010 3:16 am

I suffer from a stiff neck (back of neck, base of skull) almost daily, and it is always worse when my MS is more active. The stiff neck often goes hand in hand with a low-level headache and feeling of pressure and fullness in my head, and the feeling that I need to pop my ears by holding my nose and blowing! Does anyone know how this ear fullness could match up with CCSVI?

I also suffer from cold feet and hands, more so during relapses, and have had one warm foot and one cold foot.

I have had symptoms at the front of my neck (around a vein, on the right side) since before diagnosis, and always coinciding with relapses and worsening of my symptoms. I have a feeling of fullness and throbbing which sometimes extends into my upper chest. This is a strange one which I would love to know if anyone else has - if I press my neck over the vein (jugular?) it makes a noise in my ear on that side as though I have put my finger in my ear.

During a discussion with my very sceptical neurologist re; CCSVI I mentioned the long-standing sensations of pain/fullness in the area around my neck vein, and he said that the veins that are supposed to be involved in CCSVI are deep inside the neck and would not cause any pain as they have little feeling. Does anyone have any info on this? Where are the veins that are blocked in CCSVI - is it not the one that goes down the front of the neck, that throbs during exercise etc? Or is this an 'upward' vein that takes blood to the brain rather than drains it?
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squishy eye

Postby hoodyup » Fri Jan 22, 2010 3:21 pm

I never knew there were so many people with cold, purple feet! My wife was thinking she was unique (well, she still is, just not in the feet department). Has anyone else had the weird symptom of "squishy eye"? If she presses gently on her right eye (but not the left one) an audible squish sound can be heard. I have told her "Don't do that, you're creeping me out". This only makes it more fun for her.
Andrew
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Postby pklittle » Tue Mar 09, 2010 2:23 pm

Hello all,
My hands get cold easily, and on occasion they are not just cold but the fingers turn white and go numb. Freaks me out Other times, I've had the palms of my hands turn bright red.
As for my feet, for the past few years they've been extremely dry, like abnormally dry. At times my left foot's toenails turn blue. Lately my feet have been really cold at night.. gotta sleep w/socks on.
No low BP, no stiff neck.
Pam
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Common symptoms

Postby elyse_peace » Tue Mar 09, 2010 4:09 pm

Hello Pam,
The white/numb fingers are a condition called Reynaud's Syndrome. You can google it.
I didn't think of this before, but... does anyone else have difficulty lifting their arms? I can get them up, but holding them up is definitely a hardship. I cannot do it for long. It occurs to me that my arms are darn near my neck, which is ALWAYS stiff.
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Postby sus » Tue Mar 09, 2010 8:59 pm

Interesting reading, here are my few odd things ......I been dx2008 dec, (im over 30 now) have time to time had episodes of "crunchy" neck when I turn my head, no pain with it though. It goes away for awhile then it is there again.

I have soft lump on a right side of my neck, been there since I was a teenager, docs haven't given any explanation to this. Its just "one of those things.." Sometimes its sore and sometimes less prominent, its been probably 30mm in size.

I have opposite symptoms to cold feet and hands, I've been told that I am "hot" to touch, and my veins has always been on surface (ideal for donating blood). Also sometimes I wake up feeling that train just ran over, feeling heavy and tired and head feels "full".

I bruise fairly easy, but more to the point, I can get a bruise from no contact. I've had several occasions when vein blews up in my knuckle and it turns red and blue or in a middle of a palm of my hand, it suddenly gets hot then turns red and creates a bruise. Next day it has a blue bruise. I wonder if anybody else has these blew ups of the veins?
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Postby PCakes » Tue Mar 09, 2010 9:31 pm

Hi Sus, I am 51 now..dx 2 years ago.. and yes! .. the hand and finger bruising happens to me .. If I am doing anything that causes momentary single point pressure .. a good example is carrying a grocery bag in the crook of a finger joint.. it will feel like a pinch..then within seconds.. hot and itchy.. then swollen (have to get my rings off quickly) ..then red/purple/ blue .. often covering my whole finger.. turns near black and then dissappears again within the next day or so.

fyi.. I started a similar string a couple of days ago called.. 'Common Symptoms'.. I am going to add this to the list...
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