This is all really fascinating! Last year, when my feet turned uncomfortably cold, dry and purple, my neurologist sent me to a cardiologist, wanting to eliminate the possibility of a cardiology issue. In retrospect, it was not a cardiology issue but it WAS a VASCULAR issue. My neuro spoke of the MS theory that our bodies no long know how to regulate our body temperature functions. NOW, looking at all of this through CCSVI glasses, perhaps it is all coming together!
Perhaps these are ALL really vascular issues. Maybe we all need to go to our GP rather than our neuro and pursue VASCULAR investigation, since I bet this collection of speciific symptoms would get us going in that direction....Perhaps the MS discussion is better off NOT being had right now since the MS might be an unfortunate RESULT only and focusing the conversation on vascular issues will keep the GPs from being uncooperative and defensive.. I am going to go see my GP next week, have a vascular converation with him since I would need his help with IR referrals. I had an MRV done last month with my neuro, but I went in unarmed with all of the new protocol information, so it was quite unproductive...My neuro just rolled his eyes and said, "You're fine." I am going to try it again through my GP. This vascular line would be another direction on insurance issue too, I suppose.
Thanks for all of your comments. My sore area is on my left, backside, just below my scull and I was thinking that maybe it feels pretty good in the morning because I have been laying down all night (actually trying IBT, but that is another conversation!) and it gets worse through the day due to stenosis reflux!? I think that when it gets really sore, I am going experiment with watching how I feel after laying down for a rest....WOW! This is such an example of all of us needing to be our own advocates! Exciting possibillities to our world. Take care everyone and thanks so much for all of this insight! It will all make it easier to wait for my Poland trip in September '10. Brynn
last year, when I develop uncomfortably purp