Neurologists opinion on CCSVI actually good

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Neurologists opinion on CCSVI actually good

Postby nicko » Sat Jan 09, 2010 1:05 am

I had a conversation with a neurologist on CCSVI. He's the husband of a good faimly friend. He doesn't deal with MS patients directly. His opinion on CCSVI completely floored me.

I brought it up in passing pretty much and he pulled me into his office and sat me down. He said its not 100% proven that all Msers will have this condition. But some definately do. He then went on to say (with a smile on his face) that this might just end up to be one of the biggest screwups in the medical community. 40 years of research in the wrong direction. He then said he was keeping a close eye on it because it would completely change everything to do with MS. Its very exciting to see this in our lifetimes.

I guess not all neurologists are against this. But maybe because this one doesn't treat MS patients directly, hehe.
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Postby Algis » Sat Jan 09, 2010 1:22 am

Actually the neurologist I see and who's specialty is 'rares neuro diseases' (which includes MS) is very enthusiastic and full of hopes...
Maybe he's p*ssed to never cure anybody :lol: That must be frustrating for a MD 8) :roll:
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Postby Billmeik » Sat Jan 09, 2010 8:20 am

ya my neuro is running the ubc study. We mustnt be too negative... I mean ccsvi kind of makes ms a non-neurological condition I can see why they've been really bad and conservative and small minded in their first responses...
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Re: Neurologists opinion on CCSVI actually good

Postby magoo » Sat Jan 09, 2010 9:21 am

[quote=He said its not 100% proven that all Msers will have this condition. But some definately do. He then went on to say (with a smile on his face) that this might just end up to be one of the biggest screwups in the medical community. 40 years of research in the wrong direction. [/quote]

WOW!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby bestadmom » Sat Jan 09, 2010 11:44 am

My MS neuro doesn't believe in CCSVI but my generalist who continues to be one of my doctors is excited and would love to see people helped or cured. I credit her for her compassion, but she also doesn't make 100% of her living from ms patients.
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