This Is MS Multiple Sclerosis Community: Knowledge & Support

I am Eyal, 43 y/o male, SPMS diagnosed in July '98.
I just wanted to update on the CCSVI status in Israel:
My MS friend went to see Prof. Ariel Miller, a neurologist,
head of MS center in Carmel hospital in Haifa.
Apparently, he is looking into the matter very seriously -
went to Ferara and met the Italian staff working on it.
Another neurologist, head of MS center in Beilinson hospital
in Petach Tikva, Dr. Ronit Mosberg, believes in CCSVI
very deeply. My wife met her a few days ago.

BUT, I still haven't found a place to check my veins, let alone treat them.

Yippie! Israeli doctors seem to be very open-minded and cutting edge on many medical issues.

Neurologists cannot check your veins. Go to an interventional radiologist. They would do the liberation and have a department of diagnosticians behind them. Start with medical schools - they are most interested in research.

Please keep us informed. And welcome to TIMS.

Welcome Eyal,


Congrats!: If you have got one neurologist looking into the matter very seriously ... and went to Ferrara...and another neurologist, head of MS center...believes in CCSVI deeply... believe me: you are very lucky. IMHO this is probably the most important thing you could have.

Best wishes.

Pepe.

Right! I'd send mails to the bigger universities and especially the radiologists and the vascular surgeons and angios. And as the Israeli neurologists seem to be much more open-minded than the ones in Germany I guess the odds are very good that you'll succeed.

eyal,

please keep me posted, am here in ny, talked to an angio dr. at columbia presp. he seems also interested, but is waiting for a clinical trial....

shalom

It's a good news, Israel has excellent facilities SM.
What is the position of Israel MS Society?
Have issued some statement on CCSVI?

Eyal,

Mah nish ma?

Thank you for that posting. Please keep us all informed as to any progress. I am in London and there is nothing happening in England regarding CCSVI except a lot of "no". I have a very progressive doctor and even he told me to go away.

I would go anywhere to have this procedure done - having just fought off cancer I do not want to waste any more of life with chronic fatigue I get as one of my symptoms.

Stay well. Keep smiling - it makes everyone else wonder what you are up to!!!!!!!

dear eyal
i've got your name from a friend who knows i'm well informed about ccvsi i will be most the keening to help you with information
i'm a ms patient diagnosed 10 years ago i'm 55
i heard about ccvsi since january and since then i'm more then informed of what is going on about ccvsi and especially here in israel since i want to do this procedure too
i know an israeli who did it twice (he live in bologna) and luckily is treated by dr. salvi (his neurologist) and dr. zamboni , he is 66 and speaks hebrew
i will like to tell you everything but i want to make sure you want to hear
so if you want more information i would love to help you
my name shoshana shaffir, treated with dr. mosberg in belinson and have a lot of information tons (even a recording of a lately program made in canada with ms patients talking about the pocedure
shaffir51@gmail.com

Hi Shoshana

I read your posting with great interest but can you please explain something - are you saying that treatment is now available in Israel?

I would be very interested if it is.

Many thanks

i've sent you a long clarification by mail
please all questions will answer by there since it is much easier to write all need information............
shoshi

Please keep us posted...
I live in Chile, though I lived in Israel for 4 years and would be willing to have the CCSVI procedure done there, cause it's not here yet.
I was diagnosed TOS upon having my veins and artheries checked. I'm eager to have the procedure done!!!!!!
If you have those Drs. in Israel that support the CCSVI procedure... I will appreciate it if you could post them.
Toda rava!!!!!

unfortunately the powers that be here in the free world (keep on rockin) are doing their best to prevent us from even *paying* for the testing and surgery we need. we know the facts, and this looks here like suppression of them for the sake of money and power. it will be ironic if i have to travel to the country that brought us Copaxone to get what i need. once more, Israel shows us the way

hope you have great success, and that your treatment brings you more releif than you expect. i had my dx the same month as you. still hoping

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

send me a mail to shaffir51@gmail.com te contesto lo que pasa aca en israel con ccvsi, hasta pronto
shoshi

Hello ,I am new on the forum,and really only just joined because I saw this topic about CCSVI.I also live in Israel,and have MS for many years.I am really interested in this treatment.Can any one tell me if they know if and where it is available in Israel?
I am treated at Sheba hospital,in Tel Aviv.
All the best to all of you,
Savta [/b]

i'm ms too, treated in belinson and very well informed about ccvsi (i'm connected to the source)
want to know details write me to shaffir51@gmail.com i will give you there my phone no. and we can talk
lehishtamea
shoshi