I hadn't posted this before but this seems like a good place. I am one of the people who was scheduled for a procedure with Dr. Dake but got postponed at the end of December. I went for testing anyway. He was just amazing. I can't say enough about him.
I was all the more sure of the testing results because he explained that he does not write up the report; an independent doctor reviews the films later and writes up a report based on what that doctor objectively sees -- and we would have to assume that this is going to be a doctor who is not biased to look for CCSVI since it's so new.
Dr. Dake reviewed the films with me right after the MRV, and what he said was slightly different from what was on the report I received later, which also made sense to me. When I have an MRI, the info I get from reviewing an MRI in the office with my MS specialist can be more detailed and useful than what's on the report from whoever wrote up the MRI. Often the MS specialist finds things that were missed by the doctor who did the report.
We should remember that when we're looking at all of this info -- different specialists can look at the same films and see different things. This is still an art, not an exact science.
That said, here's a summary of my MRV from Stanford, with allowances to the fact that I may well be messing something up here by accident -- but in the interest of helping this great thread, here's my best effort!
* arachnoid granulation in the left transverse sinus
* flattening/"pancaking" of the bilateral internal jugular veins at the level of the C1 arch (moderate on the right, severe on the left)
* flattening of the bilateral lower internal jugular veins at the approximate level of C6 (moderate/severe on the right, severe on the left)
* azygous needs "more investigation"