Sunlounger in Katowice 13th Jan

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby bestadmom » Thu Jan 14, 2010 9:27 am

I love the story about the older lady too. I wonder if she works for Dr. Simka to do this for all his patients?! Just joking.
User avatar
bestadmom
Family Elder
 
Posts: 722
Joined: Mon May 18, 2009 3:00 pm
Location: CT

Advertisement

Payment?

Postby Olive » Fri Jan 15, 2010 6:27 am

Hi Stefan and others!

So how are you feeling now???
Also, I want to know how you paid your way with the different scanners and Dr Simka? Was it always cash, and if so, what in Polish pulenks or whatever it is?? Euros?
Have to know what to take out with me in May......

When are you back in Britain, and have you arranged support at this end, i.e. doctors for yr warfarin like treatments...?

Continued hope and happiness for you!

Until next we can chat,
Love Soond/Olive xox :)
User avatar
Olive
Newbie
 
Posts: 5
Joined: Mon Dec 14, 2009 4:00 pm

Postby Asia » Fri Jan 15, 2010 7:00 am

Pulenks????????????? I'm sorry but that was quite funny :P
Our currency is zloty, actually.

I am also looking forward to your raport from Katowice!
MS (progressive type, not sure which) since 1991
Current EDSS 8 (self-assessed)
Not taking any MS meds since 1998
Epilepsy (had 4 attacks to date) since 2004
User avatar
Asia
Family Member
 
Posts: 51
Joined: Wed Jan 13, 2010 4:00 pm
Location: Poland

Postby Iwona » Fri Jan 15, 2010 8:20 am

Hi all !

i'm Iwona from Warsaw. My Mom had the op at the same day as Stefan. She's feeling mch stronger than before. For more effects we must wait a litttle. I would be happy if i can help you somehow during your travel or being in Poland.

Bests :D
User avatar
Iwona
Newbie
 
Posts: 6
Joined: Thu Jan 14, 2010 4:00 pm
Location: Poland, Warsaw

Postby CRHInv » Fri Jan 15, 2010 8:26 am

Welcome Iwona!
Please tell us more about your mom. You could even start your own thread for her using the new topic button.
Take care and again, Welcome!
Beth
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
User avatar
CRHInv
Family Elder
 
Posts: 402
Joined: Sun Aug 30, 2009 3:00 pm
Location: Chandler, AZ

a god send

Postby Dovechick » Fri Jan 15, 2010 8:47 am

Iwona wrote:Hi all !

i'm Iwona from Warsaw. My Mom had the op at the same day as Stefan. She's feeling mch stronger than before. For more effects we must wait a litttle. I would be happy if i can help you somehow during your travel or being in Poland.

Bests :D

Iwona, you are a god send... So kind of you to offer your help. For those of us just about to go the Poland having your help will be invaluable. We all have problems with how to pay. Some of our banks will not allow us to pay with our cards, so I was wondering if we could get their bank details so we could transfer funds directly to them, but as I don't speak Polish I can't speak to anyone at the clinic about it.
If you feel that you can help in this respect I could send you a private message on this site with the kind of info that would help.
If the opportunity arrises could you find out for us?
I hope your mother continues to make good progress and we will all be looking forward to hearing about it.
Thanks
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
User avatar
Dovechick
Family Elder
 
Posts: 349
Joined: Sun Feb 12, 2006 4:00 pm
Location: Sussex UK

Postby sunlounger » Fri Jan 15, 2010 9:08 am

Hi all,

Just to say you can pay very easy with most cards.I used my visa electron.
If you just let your bank know before you come there will be know promlem at all ??
My bank didnt know I was make a payment in Poland and my card went through perfectly so please dont let this be an issue because its not they have a card machine which you enter your pin code.
There would be know need to make a bank transfer ??

Why would your bank not let you pay by your card ?? strange :?:


Hi Iwona :D
it was so nice to meet you and your mum great to hear of her improvements.

So far all I have noticed is my normally freezing cold right hand is always warm.


Best wishes

sunlounger
User avatar
sunlounger
Family Elder
 
Posts: 110
Joined: Wed Nov 04, 2009 4:00 pm

CCSVI

Postby Edser » Fri Jan 15, 2010 9:23 am

Good afternoon TiMS & Stefan
Well done on getting the Procedure done Stefan.Keep the faith :D
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Edser
Family Elder
 
Posts: 152
Joined: Mon Oct 26, 2009 4:00 pm
Location: Co.Cork.Ireland.

Postby Iwona » Fri Jan 15, 2010 9:35 am

My Mom got a bill from them which must be pay over the next 14 days into their account. I know the account details. You can also pay by cash or with yor credit card.

One of the nurses speaks a little english so don't worry about that.

I don't think you will have any problem with your card. I'm using my debit card visa electron from lloyds bank to make a payments in Poland and everything is ok.

P.s. Stefan is my hero :)
User avatar
Iwona
Newbie
 
Posts: 6
Joined: Thu Jan 14, 2010 4:00 pm
Location: Poland, Warsaw

Postby Dovechick » Fri Jan 15, 2010 10:31 am

sunlounger wrote:Hi all,

Just to say you can pay very easy with most cards.I used my visa electron.
If you just let your bank know before you come there will be know promlem at all ??
My bank didnt know I was make a payment in Poland and my card went through perfectly so please dont let this be an issue because its not they have a card machine which you enter your pin code.
There would be know need to make a bank transfer ??

Why would your bank not let you pay by your card ?? strange :?:



sunlounger

Don't know Stefan, but I know two people who did have a problem... so I am trying to make sure I don't.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
User avatar
Dovechick
Family Elder
 
Posts: 349
Joined: Sun Feb 12, 2006 4:00 pm
Location: Sussex UK

Postby sunlounger » Fri Jan 15, 2010 1:21 pm

Hi Michele,

I was also worried about my visa electron card not working but it went through ok.
They do have internet access if you use online banking so could make a transfer online or like Iwona have 14 days to pay invoice.

I wanted to say about Dr Ludyga the vascular surgeon.
He spoke to me about what they are doing there and showed me many many emails from people who have had benifits from this treatment.
And thats clearly the reason they continue treating.
He said they would be happy for other doctors to come and see what they are doing so they can also offer this else where.
I have never met a more genuine caring Doctor in my life and can honestly say anyone going Poland will be in the safest hands with his team.
The other vascular surgeon is Dr Kazibudzki and Dr Swierad is the interventional cardiologist who are present in the treatment room.

I pray I will notice more improvements soon and keep checking my normally cold right hand but so far its been warm everytime and this makes me smile and gives me so much hope :D

sunlounger :D :D :D :D :D
User avatar
sunlounger
Family Elder
 
Posts: 110
Joined: Wed Nov 04, 2009 4:00 pm

Postby LR1234 » Fri Jan 15, 2010 1:29 pm

Hi all,
I was with Iwona's mum and Stefan in Poland being liberated.

I just want to echo Stefan's words about Dr Ludgya and all the dr's and nurses, they are all very caring, professional and careful.
Dr Ludgya always operates on the side of caution. Anyone who is treated will really be in safe hands.

I am going to report on my procedure (in a separate thread and not hijacking Stefan's) as soon as I have something either positive or negative to say in terms of symptoms.

Note to those planning on going to Poland, the procedure is practically painless, I am a real wimp and I felt nothing plus the mild sedative they give you via the IV is great :)

L
LR1234
Family Elder
 
Posts: 1505
Joined: Wed Feb 11, 2009 4:00 pm
Location: California

Postby Dovechick » Fri Jan 15, 2010 1:52 pm

Thank you boths for your information. Looking forward to hearing about imrpovements.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
User avatar
Dovechick
Family Elder
 
Posts: 349
Joined: Sun Feb 12, 2006 4:00 pm
Location: Sussex UK

poland

Postby esta » Fri Jan 15, 2010 2:46 pm

Hi LR1234 & Iwona & sunloubger
thanks so much for talking about Poland. I'm going in June and it just feels more and more comfortable each time I hear from anyone who has had the procedure done there... :D :D
User avatar
esta
Family Elder
 
Posts: 385
Joined: Wed Nov 25, 2009 4:00 pm
Location: Summerland. BC Canada

Postby Zeureka » Fri Jan 15, 2010 4:43 pm

sunlounger wrote:Yesterday I went to meet Dr Hartel at the department of magnetic resonance in Zabrze and had a few further scans but he could not tell me if I had any signings of CCSVI. So I came back to the hotel a bit upset still unsure.

Today I went to meet Dr Simka at EuroMedic in Rolna Street Katowice.
He asked me too lie down on the table for the Doppler examination.
Straight away he said I have a problem on my left jugular about half way down also there could be a problem high on my right but would need the venogram tomorrow to check this more. :D


Stefan, I'm really happy for you that everything went so well in the end! I am seeing Simka next Tuesday 19 Jan for a doppler (at this stage only doppler since Simka is now full for MRV and liberation until mid 2011, as he told me today on the phone).

I just have a question on the above: How did Simka explain the negative MRV results of Dr Hartel as opposed to his Doppler results? I thought both techniques are used for diagnosis. Did Simka perform another MRV which was then positive (so Hartels technique maybe not the good one? I know Simka generally includes MRV venography, followed by angiography in his standard procedure)

Or did you see sthg yourself about the left jugular on the doppler screen - did Simka show you while he did the doppler-test? Or did you see pics showing from another exam? Usually one sees that from pics of the MRV or not? I am really excited about this :D , but also always very critical from nature :roll: , sorry...

Steffi
User avatar
Zeureka
Family Elder
 
Posts: 481
Joined: Thu Jan 14, 2010 4:00 pm
Location: Italy

PreviousNext

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service