Sunlounger in Katowice 13th Jan

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Sunlounger in Katowice 13th Jan

Postby sunlounger » Sat Jan 09, 2010 9:38 am

Hi all,

Arrived today in Katowice ready to see Dr Simka and Dr Hartel on Monday for a MRV,Doppler on Tues and possible treatment on the 13th :D

I managed to get Dr Haacke's MR Protocol done in the U.K but the Radiologist said there was no obvious venous obstruction.
When I looked at the images last night it looked like there was clearly a problem high up on my right internal jugular. ??
I'm going to phone Dr Simka Monday morning and see if he can take a look at these images.
Hopefully they will be good enough so I won't have any need for a further MRV and no more contrast (gadovist) injected. :(

I will post how the tests go Mon and Tues.

Stefan
34 RR2003 SP2005 EEDS 6.5
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Postby ozarkcanoer » Sat Jan 09, 2010 9:47 am

Good luck with the good doctor, sunlounger ! I am interested to hear what Dr Simka has to say about your "normal" MR protocol, since he is one of the experts at finding these problems.

ozarkcanoer
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Postby Brynn » Sat Jan 09, 2010 10:15 am

How exciting, Sunlounger! We will love to hear all your details! Perhaps you could ask Dr Simka if he anticipates putting additional teams together, which might move up his scheduling!! :D There is nothing better than hearing about all this improvement, but it makes my September date seem a long way away! :D Well, have a fabulous, productive week!! Brynn
41 years old, dx 1998, current EDSS 6.5
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Postby sunlounger » Sat Jan 09, 2010 11:38 pm

There is his colleague Dr Kostecki in Tychy(Poland) kosteckj@op.pl providing Doppler testing but not sure if he is also arranging procedures ?
I will try and find out as much as possible this week :D
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Postby crocky » Sun Jan 10, 2010 1:25 am

Hi Stephan

Didn't realise u were sunlounger! Wishing you all the very best again, and we are all really looking forward to hearing how it goes - regards Suzanne
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Postby RedPepper » Sun Jan 10, 2010 11:38 am

Hi Sunlounger!

Wishing you a great meeting with the doctor tomorrow. But first a good night's sleep.
Bravo for getting there! What a way to start a new year and a new decade!



:wink:
*hug*

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all the best to you

Postby alby » Sun Jan 10, 2010 10:06 pm

me and everyone else are anxiously waiting for more info from you. hope for success.
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Postby SandyK » Sun Jan 10, 2010 10:30 pm

Good luck to you. I hope you come back fresh as a daisy!
Diagnosed 1994, Self EDSS is 6.5
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Postby Edser » Mon Jan 11, 2010 2:23 am

Good Morning TiMS & Stefan.
I wish you the best of luck & i hope Marian can do something for you. :D
Slainte Mo Chara
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Postby Mutley » Mon Jan 11, 2010 2:46 am

Good luck Sunlounger, hope all goes well today!!
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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Postby pgm1 » Mon Jan 11, 2010 10:30 am

Hi Sunlounger

Hope all goes well for you

Pam :)
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Postby Johnson » Mon Jan 11, 2010 3:42 pm

Wow! So soon.

Best of luck, and healing vibes.
My name is not really Johnson. MSed up since 1993
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Postby sunlounger » Tue Jan 12, 2010 4:21 am

Hi all,

Thanks for your support. :D

Yesterday I went to meet Dr Hartel at the department of magnetic resonance in Zabrze and had a few further scans but he could not tell me if I had any signings of CCSVI. So I came back to the hotel a bit upset still unsure.

Today I went to meet Dr Simka at EuroMedic in Rolna Street Katowice.
He asked me too lie down on the table for the Doppler examination.
Straight away he said I have a problem on my left jugular about half way down also there could be a problem high on my right but would need the venogram tomorrow to check this more. :D

So I am very happy and excited to say I will be having the procedure tomorrow ether angioplasty or if needed a stent :D

I couldn’t feel in any safer hands than Dr Simka and his team. :D

When I was waiting at Dr Simka’s for my taxi this 82 year old lady came up to me speaking quite good English and gave me a saint christopher pendant saying that I was going to be lucky in Poland and also for the rest of my life and she would pray for me for all the year. :D

wow this nearly moved me to tears but I'm still holding it together just :D

Should be back at the hotel Thursday when I'll hopefully be liberated wooo hoooo :D :D :D :D :D :D
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Postby Robnl » Tue Jan 12, 2010 4:43 am

Amazing experiences Sunlounger :D

While you are there, could you ask dr Simka when the March/April dates will be send to de patients planned for these months?

Thx

Rob
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Postby RedPepper » Tue Jan 12, 2010 7:36 am

What super news this is old boy! :D

Exciting times, and that's also a beautiful story ... Good luck, x
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