Are we there yet? Are we there yet? It's just so hard to wait.
People here have good ideas on what we can do NOW. It helps to read what other people are doing, even if they are seemingly tiny victories.
Don't worry, I'm not planning pushing to be tested until I know the radiologist who is testing me knows what to look for.
As far as big benefactors with MS or MS in their family, maybe we can compile a list so that these can be contacted.
cah, Thanks! I've been seeing this picture in my mind for a few weeks now. I just wish I knew how the story ends!
So, we need a very clear cut, to the point, easy read document for professionals that don't have a lot of time. It needs to be very informative with references and links for further investigation. CCSVI does not need to be touted as the miracle cure, or they will write it off without even reading it. I know that there is tons of info. out there to share, but any that fit this description? A Q & A sheet works good for this. That's how I talked my Neuro into LDN. I just faxed the Q & A, and he prescribed! I think that if I had taken tons of papers in for him to look at, he would have felt threatened, like I knew more than he. Anyway, I'm rambling I know. If this has already been done, please point me to it. If not, it might be a valuable project.
The Putnam history is very interesting.
In light of the Putnam history, I think you will find this statement by Dr. Alex-Rae Grant. He is the Consortium for Multiple Sclerosis Centers website's Project Leader for Neurology. Which means, neurologist go to this website for latest news on MS, and to get licensed to be an MS specialist. This is his "expertise":
[/quote]The recent interesting work by Zamboni et al raises an idea from far out in left field; could MS be caused, or at least accompanied by narrowing or blockage of the veins that drain the brain and spinal cord? Ok, so none of the 50 years of research in MS so far have suggested this. And people who are known to have blockage of the veins draining the brain (Cortical vein thrombosis) don't get MS. Pathological studies of MS patients have never suggested this.[quote]