Haacke workshop

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby cah » Sun Feb 07, 2010 2:04 pm

sonia52 wrote:I don't understand why. The link doesn't work. But when you copy it and paste it in your browser, it's OK.


It's because the forum software thinks that the link stops at the brackets. I think there's no workaround, I tried using url-tags but this doesn't work either. The only thing you can do is make a shortened url using an online service, e.g. www.tinyurl.com

http://tinyurl.com/yls4sem

(This is the link to the pdf-file)
"There is only one good, knowledge, and one evil, ignorance." Socrates
User avatar
cah
Family Elder
 
Posts: 336
Joined: Tue Oct 27, 2009 4:00 pm
Location: Germany

Advertisement

Postby sonia52 » Sun Feb 07, 2010 2:15 pm

Great! Thanks a lot Cah.
User avatar
sonia52
Family Member
 
Posts: 50
Joined: Tue Nov 24, 2009 4:00 pm
Location: Gatineau (Québec) Canada

Postby jimmylegs » Sun Feb 07, 2010 7:52 pm

i was busy teaching today so not following developments here, but chatted with a student who happens to be a nurse with some ms patients, telling her all about the workshop.. she is very interested so next week i'll have to get her the link to the video too :).. hey if you read this L, 'hi'! ;)
jimmylegs
Volunteer Moderator
 
Posts: 9023
Joined: Sat Mar 11, 2006 4:00 pm

Postby happy_canuck » Mon Feb 08, 2010 2:46 am

Local Hamilton paper has first reports of Sunday workshop and says a press conference will be held Monday:

http://www.thespec.com/News/Local/article/717943
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tinyurl.com/44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tinyurl.com/3wzmkmg</a> ~Facebook</strong><br />
User avatar
happy_canuck
Family Elder
 
Posts: 267
Joined: Sat Nov 28, 2009 4:00 pm
Location: Victoria, BC Canada

Postby eve » Mon Feb 08, 2010 4:13 am

Media Statement - New Multiple Sclerosis Research Warrants Funding

TORONTO, Feb. 8 /CNW/ - The pioneer of a new, but yet unproven, treatment for multiple sclerosis (MS), Dr. Zamboni, will make his North American debut at a press conference at McMaster University Hospital in Hamilton, Ontario today.

Dr. Zamboni, from the University of Ferrara in Italy, was the first to hypothesize that abnormalities in blood drainage from the brain and spinal cord may be a critical culprit in the development of MS. This condition is called Chronic Cerebrospinal Venous Insufficiency (CCSVI). More telling still, Dr. Zamboni proposes that a simple endovascular surgical procedure, which unblocks veins to permit the flow of blood, is potentially effective in correcting the abnormalities and the debilitating effects of MS.

Since multiple sclerosis was first diagnosed in 1868, there has been no cure and no effective treatment abating its progression. The leading thinking until recently was that MS was an auto-immune reaction, where the body begins attacking itself. Dr. Zamboni's preliminary findings turn conventional wisdom on its head, and although far from being proven, offer MS sufferers and those close to them a compelling new avenue of inquiry and research.

Multiple sclerosis is the primary neurological disease affecting young adults in their prime, with most people initially diagnosed between the ages of 20 and 40. Most people suffering from MS are unable to work 10 years after diagnosis, many living years with growing disabilities. It is also highly prevalent in Canada, affecting an estimated 44,000 to 78,000 Canadians. Canada has the 5th highest prevalence of MS in the world on a per capita basis.

Current drug treatments are ineffective in abating this disease's progression, and are expensive. The Canadian Institute for Health Information estimates that MS costs Canada over $1 billion each year.

Dr. Zamboni's research has sparked a drive around the world to thoroughly investigate these findings and see if they can be replicated. The question is simple: do people suffering from MS have blocked veins in the neck and upper chest and is there a compelling cause and effect relationship. Only additional research can answer this question once and for all.

Yet undertaking CCSVI research requires funding. To date, the St. Joseph's Healthcare - McMaster initiative has raised $50,000 out of a needed $500,000. A University of British Columbia trial has received $10,000 out of a projected $3 million. The MS Society of Canada may award each of these initiatives $100,000 in July 2010. However, for this research to get underway in Canada it will require Canadian donors contributing.

Canadians donated $62 million to charities working in the multiple sclerosis field last year. As an advocate for effective and smart charitable giving and on behalf of donors who have solicited our counsel on MS research in Canada, Charity Intelligence feels that supporting CCSVI research presents an opportunity for donors to have high impact in their giving. Donors wanting to support CCSVI research in Canada should donate directly to St. Joseph's Healthcare and McMaster University in Hamilton, Ontario and University of British Columbia, designating their donations to CCSVI research.

Charity Intelligence feels the diversity the CCSVI hypothesis brings to MS research can only advance our understanding of this horrible disease and after more than 100 years, it's time to donate to alternative perspectives.


About Charity Intelligence Canada: Charity Intelligence Canada (Ci) is a Canadian charity that provides donors with information, empowering them to learn how their generosity can impact real change. Ci acts as an objective broker for donors, providing evidence-based research and standardized analysis to help donors make intelligent, more strategic giving decisions. Mirroring the strategies used by The Bill and Melinda Gates Foundation and using investment models, Ci helps donors to be social investors.

http://www.newswire.ca/en/releases/arch ... c7529.html
dx 2002,RRMS,  suspected begin of MS 1978 (age 10)
User avatar
eve
Family Elder
 
Posts: 117
Joined: Tue Jan 05, 2010 4:00 pm
Location: Netherlands

Postby ElMarino » Mon Feb 08, 2010 4:39 am

Another story covering the workshop:
http://www.newswire.ca/en/releases/arch ... c7529.html
Apologies for my terrible username. I never thought I'd use the forum much when I registered..
User avatar
ElMarino
Family Elder
 
Posts: 154
Joined: Mon Mar 02, 2009 4:00 pm

Postby JoyIsMyStrength » Mon Feb 08, 2010 9:50 am

Charity Intelligence feels the diversity the CCSVI hypothesis brings to MS research can only advance our understanding of this horrible disease and after more than 100 years, it's time to donate to alternative perspectives.


Wow I LOVE this quote!!
User avatar
JoyIsMyStrength
Family Elder
 
Posts: 164
Joined: Fri Jan 01, 2010 4:00 pm
Location: US

Postby happy_canuck » Mon Feb 08, 2010 10:25 am

This is what I just put on the CCSVI at UBC Facebook page in response to these 'newswires.'

Interesting release from CNW, a Canadian newswire service. It claims UBC has raised only $10,000, which is not the information I was given a month ago (the figure was MUCH higher). It also lists "charity intelligence" as the place to give donations. Again, I have never heard of them and they are not the ones collecting for CCSVI at UBC specifically.

The next one is from "Canada Free Press" and states almost the identical information.
http://canadafreepress.com/index.php/article/19791

(note "Because without America there is no Free World" on their banner...).

If you feel so inclined, comment on these articles and point them to the actual UBC donation website or give them the UBC donation phone number: 604-822-8079
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tinyurl.com/44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tinyurl.com/3wzmkmg</a> ~Facebook</strong><br />
User avatar
happy_canuck
Family Elder
 
Posts: 267
Joined: Sat Nov 28, 2009 4:00 pm
Location: Victoria, BC Canada

Postby happy_canuck » Mon Feb 08, 2010 10:31 am

I just went through Charityintelligence.ca and nowhere is UBC or CCSVI mentioned as a recipient of any donations through this charity. Be cautious everyone! Make sure your donations go to the research you intended to fund.
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tinyurl.com/44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tinyurl.com/3wzmkmg</a> ~Facebook</strong><br />
User avatar
happy_canuck
Family Elder
 
Posts: 267
Joined: Sat Nov 28, 2009 4:00 pm
Location: Victoria, BC Canada

Previous

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service