contribution for CCVSI research

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

contribution for CCVSI research

Postby sbr487 » Tue Jan 12, 2010 11:09 pm

I have seen few threads about contributing for CCSVI research. I was thinking if we can start a thread exclusively for listing down the research groups who are looking for contributing in CCSVI. And I am not sure if there is a better way to manage but every time a new research group opens makes a request for contribution or existing group closes (e.g. the study got complete) we can edit the final post by deleting or adding the names. This way the final post will always have the most up to date info and users dont have to browse every post to get the info ...
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Postby DizzyLiz » Thu Jan 14, 2010 1:15 pm

Below is a site for contributing to CCSVI testing in Canada.

This group has been very busy raising funds and
lobbying for testing in Canada.
Check out the site! Things are moving in Canada...

There was a meeting in Toronto today involving some very prominent people - fundraising and info about support for this study to be done. I believe Dr. Haacke was there also. - I may have some more info on that to share soon.
There is another meeting on Monday, Jan. 18th in Ottawa.

http://www.msliberation.ca/MS_Liberatio ... lcome.html
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Postby Arcee » Thu Jan 14, 2010 1:37 pm

How about making a sticky for donations? It can then join other important issues at the top of the forum and be easy for updating.
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Postby sbr487 » Thu Jan 14, 2010 7:45 pm

Thats what I was talking about (creating a sticky)
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Postby jimmylegs » Fri Jan 15, 2010 4:14 am

if somebody wants to write up the first post with a subject included to be its title, that would be the first step.
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Postby cheerleader » Fri Jan 15, 2010 7:32 am

Here's a page on charitable giving I wrote up for the FB page, if it can be included in a more comprehensive sticky-
thanks, JL!!!


1. Buffalo Neuroimaging Center- now conducting research into diagnosing CCSVI
http://www.bnac.net/?page_id=497

2. Stanford University MS Innovations Fund- now planning a clinical trial for CCSVI in MS for mid 2010
http://www.facebook.com/note.php?note_id=146260942210
Please send donations to:
Stanford MS Innovations Fund c/o Dr. Michael Dake
Cardiovascular Research Center, 300 Pasteur Drive,
Stanford, CA 94305-5407.

3. The MRI Institute- Dr. Mark Haacke's organization is now setting up worldwide MS/CCSVI diagnostic centers, with plans to help diagnose and treat CCSVI
http://mrimaging.com/donate.html

An expert in advanced MRI techniques, Dr. Mark Haacke, is a professor at McMaster University. He is helping to coordinate an effort in CCSVI at McMaster and St. Josephs's Hospital. This research will allow for people in Ontario and Eastern Canada to volunteer for the study and also to be more aware of information that will speed the work of the study and perhaps help all interested parties with MS. St. Joseph's Hospital in conjunction with McMaster are currently in the process of obtaining human studies approval for this project.

There is plan to fund the quick start of the study with private donations.

McMaster Donation information:

* http://givetomcmaster.ca <http://givetomcmaster.ca/> Donation Designation Category: “Other”; Designation for this gift: “Other”; then Special Instructions “MS research in the MR Imaging Research Centre”
* Or mail cheque written to McMaster University c/o Terry Milson, Faculty of Engineering, McMaster University,1280 Main St. W., Hamilton, ON L8S 4L7, with instructions to donate to the “MS research in the MR Imaging Research Centre

4. Direct MS- Dr. Ashton Embry's proactive charity-
Dr. Embry has spoken out as to the need for more research and testing for CCSVI. Now.
http://www.direct-ms.org/donate.html

5. University of British Columbia donations-
The UBC group needs to raise $500,000 to start their CCSVI research.
Here is the link to make a donation.
Make sure you designate CCSVI research so the money goes to that project.

https://www.worldclasshealthcare.ca/howtogive


link to FB page
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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