This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Fri May 24, 2013 8:11 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 6 posts ] 
Author Message
PostPosted: Wed Jan 13, 2010 12:09 am 
Offline
Family Elder
User avatar

Joined: Tue Nov 24, 2009 4:00 pm
Posts: 860
Location: India
I have seen few threads about contributing for CCSVI research. I was thinking if we can start a thread exclusively for listing down the research groups who are looking for contributing in CCSVI. And I am not sure if there is a better way to manage but every time a new research group opens makes a request for contribution or existing group closes (e.g. the study got complete) we can edit the final post by deleting or adding the names. This way the final post will always have the most up to date info and users dont have to browse every post to get the info ...


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jan 14, 2010 2:15 pm 
Offline
Family Member
User avatar

Joined: Mon Nov 30, 2009 4:00 pm
Posts: 29
Location: Ontario, Canada
Below is a site for contributing to CCSVI testing in Canada.

This group has been very busy raising funds and
lobbying for testing in Canada.
Check out the site! Things are moving in Canada...

There was a meeting in Toronto today involving some very prominent people - fundraising and info about support for this study to be done. I believe Dr. Haacke was there also. - I may have some more info on that to share soon.
There is another meeting on Monday, Jan. 18th in Ottawa.

http://www.msliberation.ca/MS_Liberatio ... lcome.html


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jan 14, 2010 2:37 pm 
Offline
Family Elder
User avatar

Joined: Wed Jan 05, 2005 4:00 pm
Posts: 338
Location: Massachusetts, USA
How about making a sticky for donations? It can then join other important issues at the top of the forum and be easy for updating.

_________________
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jan 14, 2010 8:45 pm 
Offline
Family Elder
User avatar

Joined: Tue Nov 24, 2009 4:00 pm
Posts: 860
Location: India
Thats what I was talking about (creating a sticky)


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jan 15, 2010 5:14 am 
Offline
Volunteer Moderator

Joined: Sat Mar 11, 2006 4:00 pm
Posts: 7631
if somebody wants to write up the first post with a subject included to be its title, that would be the first step.


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jan 15, 2010 8:32 am 
Offline
Family Elder
User avatar

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4682
Location: southern California
Here's a page on charitable giving I wrote up for the FB page, if it can be included in a more comprehensive sticky-
thanks, JL!!!

Quote:

1. Buffalo Neuroimaging Center- now conducting research into diagnosing CCSVI
http://www.bnac.net/?page_id=497

2. Stanford University MS Innovations Fund- now planning a clinical trial for CCSVI in MS for mid 2010
http://www.facebook.com/note.php?note_id=146260942210
Please send donations to:
Stanford MS Innovations Fund c/o Dr. Michael Dake
Cardiovascular Research Center, 300 Pasteur Drive,
Stanford, CA 94305-5407.

3. The MRI Institute- Dr. Mark Haacke's organization is now setting up worldwide MS/CCSVI diagnostic centers, with plans to help diagnose and treat CCSVI
http://mrimaging.com/donate.html

An expert in advanced MRI techniques, Dr. Mark Haacke, is a professor at McMaster University. He is helping to coordinate an effort in CCSVI at McMaster and St. Josephs's Hospital. This research will allow for people in Ontario and Eastern Canada to volunteer for the study and also to be more aware of information that will speed the work of the study and perhaps help all interested parties with MS. St. Joseph's Hospital in conjunction with McMaster are currently in the process of obtaining human studies approval for this project.

There is plan to fund the quick start of the study with private donations.

McMaster Donation information:

* http://givetomcmaster.ca <http://givetomcmaster.ca/> Donation Designation Category: “Other”; Designation for this gift: “Other”; then Special Instructions “MS research in the MR Imaging Research Centre”
* Or mail cheque written to McMaster University c/o Terry Milson, Faculty of Engineering, McMaster University,1280 Main St. W., Hamilton, ON L8S 4L7, with instructions to donate to the “MS research in the MR Imaging Research Centre

4. Direct MS- Dr. Ashton Embry's proactive charity-
Dr. Embry has spoken out as to the need for more research and testing for CCSVI. Now.
http://www.direct-ms.org/donate.html

5. University of British Columbia donations-
The UBC group needs to raise $500,000 to start their CCSVI research.
Here is the link to make a donation.
Make sure you designate CCSVI research so the money goes to that project.

https://www.worldclasshealthcare.ca/howtogive


link to FB page

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 6 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. anyone have CCVSI at Euroclinic

thebean

5

1177

Thu Jul 22, 2010 6:17 am

Pepe View the latest post

There are no new unread posts for this topic. non-surgical treatment for CCVSI

swibe

1

1458

Thu Dec 03, 2009 7:11 am

Algis View the latest post

There are no new unread posts for this topic. American CCVSI sites?

reece

2

1082

Wed Aug 18, 2010 11:15 am

fogdweller View the latest post

There are no new unread posts for this topic. CCVSI PROCEDURE IN SYDNEY

seeva

4

1234

Thu Feb 10, 2011 7:51 pm

seeva View the latest post

There are no new unread posts for this topic. large hospital Cooper in nj biased against ccvsi

jak7ham9

4

1436

Sat Jan 09, 2010 2:34 pm

Rokkit View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: