Haven't been able to read all that is on this thread yet, but am making my way through it as I find this all so fascinating!
I voted and then it occurred to me. can't believe it hit me so late, but I thought this might interest you. Last year I experienced the worst relapse yet in my 12 plus years with RR. Early in the year I had been painting using oils and so used turpentine, which is a nasty solvent. I did not have proper ventilation, I think I poisoned myself, and had a relapse, not so mild but not so strong and in a month or so after I stopped painting for awhile started to recover. During that time I either stood or sat in front of my easel, about 50/50, but when painting not really paying attention to HOW I was sitting or standing. So I have assumed the turpentine inhalation played a large role in the relapse.
But I was preparing for an exhibit in July so I had to keep working, although I quit with the turpentine. Anyhow I ended up sitting a lot on the floor instead of a chair for I abandoned the easel in favor of the floor. The weather was getting warmer so I worked outside on the pavement on our balcony, always in some cramped, either cross-legged or strange sitting position while I worked, on my knees etc. My husband several times mentioned my posture and asked me if I wouldn't be more comfortable in a chair, but I said no, because painting is a very physical act for me, sort of getting my whole body into it.
I worked intensely like this for at least two to three months, and just kept stretching when I was done working. It was stupid to work this way but I was in the grip of something larger than me and ignored how sore I would get because I always just thought, well, I'll just stretch.
After my show at the end of July, in August I started to symptomize again, and then there was an increase of symptoms in to a full blown attack that lasted about 4 months and I am still recovering, although doing much better. But it was sever: impaired walking, talking, and seeing.
When I saw this link on posture I put this together, not ever having considered posture as related to CCSVI, although I have a strong yoga practice and am always working on alignment, because I have had bad posture my entire life....was a waitress for many years which really killed me in the shoulders and neck, all the way until 1998-2002 when I owned a restaurant and so was always on my feet, same bad posture, lots of standing etc.
But I am more sore and have difficulty after sitting for long periods of time and so end up on the floor every day on my yoga mat stretching and breathing deeply and working on alignment.
I thought this testimonial might be helpful to you in some way, and perhaps you could give me some insight on this.
By the way, I have been sleeping on an inclined bed now for three months and get very solid sleep. My husband loves the incline as well, even though he does not have MS, he swears he gets better rest. He has always been an insomniac, where I am a 'good' sleeper as they say, I can sleep almost anywhere, anytime. But I think I get deeper sleep with the inclined bed.
Thank you for all the hard work you do. This is so helpful! reading about the importance of posture, which my husband has been helping me with for many years. But old habits are hard to break.