GetActive wrote:Get Working
I'm so excited I could pee myself. I just got off the phone with an interventional neuroradiologist in my area. It was a very positive conversation. He seemed genuinely excited to be at the forefront of something so new and groundbreaking. And yet for him it is an everyday gravy job. He said he attended a conference in France recently and this is a very hot topic in the vascular world. He said it is going to be very bad for the pharmaceutical companies and for neurologists who have built a nice little industry out of "managing" MS.
I first tried emailing the hospital he works at but got no response. But not wanting to give up (I liked his credentials) I just called his office and waited to talk to a person. They took my information and he called me back within a week. He spoke with my wife first as I was out shopping. He then called me and we had a nice conversation in which he told me that as well as doing the MRV and possible intervention, he has a "lower end" specialist who will address the issue in her legs.
I am grateful to Dr. Dake for doing all he is doing for the cause of MS sufferers, and would have liked to have had him be the one to examine/treat Sharon. However, once the procedures were halted and the trials seemingly delayed, I began to seek other options. Because of all the people on this board who have done their share of trailblazing I figured no one was going to make this happen if I didn't get this into overdrive.
Meanwhile Sharon is in "not wanting to hear about it" mode. She has so little energy and is progressing so rapidly. Today, she drank coffee for her constipation and it tweaked her out big time. Once in a while I see a little sparkle of what is in there and get overwhelmed thinking "what if?" What if she could start to turn this thing around? What if she could have more good days than bad? We were tired of waiting and so here we go.
I am not posting the name of the hospital or the doctor because I don't want this to go on the radar screen just yet. Maybe it's selfish, but we want to get in there first before the storm starts for him as it did for Dr. Dake. If anyone is in Northern CA and needs to find a good vascular surgeon PM me and I will let you know this guys name after you've been sworn to secrecy.
Keep working guys, it's working!