WHY CCSVI?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

WHY CCSVI?

Postby kats » Sun Jan 17, 2010 5:07 am

:?: Why ? Just your thoughts as to why so many with CCSVI ?
Is it Hereditary? Is it Stress? Is it lack of blood flow? Is it as a result of an accident? Is it all the chemicals in our food?
Do you have any clues /ideas as to what might have triggered the onset of your ccsvi/ms?
Love to read what you think?

Kats
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No speculation please

Postby MarkW » Sun Jan 17, 2010 7:04 am

It really does not matter what the causes of CCSVI are. The steps are simple:
1 - Confirm the Zamboni correlation (ie support the Buffalo NY study, if poss)
2 - pwMS get tested for CCSVI
3 - if CCSVI present get it treated.
OK 2 and 3 are not easy but people are making progress if they have the money to do it.
Speculation about causes of MS and CCSVI are detrimental to the CCSVI theory, in my seldom humble opinion.

MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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Postby ozarkcanoer » Sun Jan 17, 2010 7:19 am

Here are some of the venous problems that have been found. Some of these must be congenital (i.e. missing jugulars, missing pre sacral venous plexus).

http://www.thisisms.com/ftopict-9663.html

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Why

Postby Dovechick » Sun Jan 17, 2010 10:01 am

I think that MS is multifactorial and therefore there may be more than one reason why some people get sick and others in the same family do not.
In our family the females of 4 generations (only know of those - but may be more) have had a variety of symptoms associated with a syndrome called Connective Tissue Disease, there are many variations of this disease which can manifest mildly or severely. It is thought to be a disease affecting the collagen in the body and therefore affects skin, joints, hair, eyes, veins and more. It does appear to be hereditary and in our family only affects women.
If there is any connection between this disease and MS it could be manifesting as CCSVI.
I hasten to add that no doctor has ever suggested this, its just a question in my mind.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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Re: No speculation please

Postby Motiak » Sun Jan 17, 2010 10:37 am

MarkW wrote:It really does not matter what the causes of CCSVI are. The steps are simple:
1 - Confirm the Zamboni correlation (ie support the Buffalo NY study, if poss)
2 - pwMS get tested for CCSVI
3 - if CCSVI present get it treated.
OK 2 and 3 are not easy but people are making progress if they have the money to do it.
Speculation about causes of MS and CCSVI are detrimental to the CCSVI theory, in my seldom humble opinion.

MarkW


I wouldn't say that it doesn't matter what causes CCSVI. If CCSVI is what causes MS and we know what causes CCSVI then we could work to prevent CCSVI and people would never have to have a relapse just to figure out that something is wrong.
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Postby Cece » Sun Jan 17, 2010 4:44 pm

If the rates of CCSVI are the same as the rates of MS (100% overlap, no CCSVI in the normal population) than isn't the rates of MS 1 in 800? In the big picture, that's not many, that's relatively few.

I believe Zamboni has suggested that CCSVI is congenital.
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In a hole the first thing to to is stop digging

Postby MarkW » Mon Jan 18, 2010 5:47 am

Lets get the facts straight:

1 - MS and CCSVI are associated with each other. This is called correlation, so far say the correlation is very high (close to 1.00).
2 - The Buffalo NY study will give further info in spring 2010.
3 - CCSVI can be treated using balloon angioplasty and/or stenting.

All other points at this stage are speculation ie they are not facts.
CCSVI might be congential but why did GiCi get a re-ocurrence more than a year after his first treatment ? No hard facts are available to us.

In medicine symptoms are often treated when the cause of a disease is not known. So lets treat CCSVI even if we do not know if it is a symptom or cause of MS. It will probably take years to gather sufficient evidence to answer the question 'CCSVI cause or symptom of MS ?'.

In the meantime, please stop speculating as you will help anti CCSVI people bury you and halt treatments.

MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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