This is what i sent:
I would like to be put on your waiting list for testing and treatment for my CCSVI. I am a multiple sclerosis patient seeking your help please. Any response would be greatly appreciated.
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and the reply like everyone else:
You are in the waiting list for "the liberation operation". The estimated time of the procedure is January 2011.
We will do our best to make the treatment possible earlier, but actually we receive more requests than we can manage in a proper time.
I will send you detailed information regarding date, payments etc. in a proper time
The hospital is in Katowice, the nearby airports are in Katowice and Krakow.
You should plan at least 7-days long stay in Poland (at least 3 days postop)You will get all necessary prescriptions and instructions how to use medications, as well as if and when to come for a follow-up (all these depends on the type of operation and patient's characteristics). In brief, postoperatively you should stay in the hospital overnight. The operation will not affect your mobility (it is only small puncture in the groin and nearly no pain).
We perform either balloning, or stenting, depending on particular characteristics of venous occlusion. Balloon angioplasty seems safer (lower probability of thrombotic event), but the possibility of restenosis is very high (~50%), so we prefer stenting, on condition that anatomic localization and characteristics of a planned stent looks safe. Anyway, in a case of doubt, we perform safer procedure (ballooning).
Marian Simka, MD
22 yr old male located in the caribbean. Suffering with MS like symptoms from early 2008 with multiple relapses under my belt with optic neuritis. Not dx'd as yet however. Hope is to ultimately be tested for CCSVI