whyRwehere wrote:Hi Marc,
Of course, I thought of you when I heard this. But isn't it interesting that you were termed a progressive MS person, but now it suits to say you aren't that after all.
My husband may well be more than just a ccsvi sufferer...very likely he needs more fixed than can be. At least we are looking now for the problem, though, huh? Had all your veins been checked, or just the jugular and azygous veins?
Again, if they look to see that it is a venous illness, they wouldn't be giving you drugs for MS that make you feel worse, or indeed make you worse.
I am waiting to hear what the NHI is going to do for you now....
As I said, it's been long acknowledged that there are vascular illnesses that can mimic MS, and any discussion of the differential diagnoses of MS always spends a considerable amount of time exploring these different vascular issues.
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