(I put this reply in the General also...)
Crazy, I know. My neuro-opthalmologist said it was MS (from MRI ,and optic neuritis, and history--despite fact the current eye tests were pretty good, and not having an incident then)--
The MRI then ordered by this dr (which showed MANY more brain lesions than the previous MRI he was using) was interpreted by radiologist as: impression includes microvascular disease (EUREKA-- CCSVI in the accepted lingo) vs inflammatory/demelinating process(ie, MS).
So Eye Dr felt it would be in my interests to be attached to a major teaching hospital MS clinic with trials, meds, "expertise" etc,. So when examined by them (note, i did forget to bring the med. records documenting optic neuritis, retrobulbar neuritis, and optic atrophy--so they had to take my word, and you know how that goes)--I was in a plus state that day--ie, no obvious slurring or muscle fatigue, eyes pretty good, walking pretty good, so appeared okay. Their interview questions much less comprhensive and not as detailed as those of the neuro opthalmologist.
Upshot: POSSIBLE MS , "lesions more consistent with vaso than MS, but could be consistent with MS"
SO VERY CLEAR IT IS ALL UNCLEAR RE: MS !!!!
AND get this--they never told me about the vaso part!!!(I just found out a year later when requested copy of records because I knew I would never go back there--they were super negative about vitamins, etc, and tried to convince me to stop the B12 shots). just said come back when you get a bit worse, we have many medicines that can help you.
And I will second your call for caution re: meds. If they can't determine a disease better than they do MS, why take "MS medicine"?? Better to get your immune system in shape with diet and supplements, find out what you might be allergic to and eliminate it from your life, ie, get yourself in as good health as you can, and possibly along the way you will start to see what really might be wrong with your body. Food allergies trigger attacks in me, and probably in long run contribute to demyelination--so best to stop the offending foods, and use nutrients to repair the myelin
rather than take meds with ALL sort of bad side effects on your body