Met this week with my MLA Jenny Kwan.
She was very receptive, and had downloaded and printed articles from the Globe and Mail and the National Post.
She listened to my brief description of CCSVI, and my description of the attempts I have made thus far to be tested.
I also let her know that I went last week to Mexico to recieved an MRV, and that my next task was to go about finding someone to interpret it.
I told her that I am on the list for Poland for 2011.
I explained that I am a strong supporter of the Canadian health system and would happily pay more tax to maintain it....
So I am feeling seriously conflicted in knowing that people in Poland are having to wait for testing and treatment as a result of the influx of people from around the globe travelling there.
I do not believe I deserve testing and treatment more than others who do not have the means, but I am trying desperately to preserve the physical and cognitive ability that I have, so I am trying to seek testing and treatment where ever it might be available, and I want to make every effort to try to get testing and treatment for myself and every other Canadian with MS, here in our own country, within our own wonderful system of health care for those in need, not just those with means.. (yikes! bit of a rant, but there you go)
A few things we discussed:
-testing would not be available through a private clinic in Vancouver if it was risky or a sham.
-if there is evidence that testing is of some value, then it should be available to persons with M.S. through the public system
-the potential cost saving to the system if people are tested, treated, and have positive outcomes, so that they can remain productive and potentially avoid becoming dependent on very expensive drugs
Some suggestions Jenny Kwan made:
- send letters to the health minister and your own MLAs, requesting that testing and treatment be made available to you, (and get friends and family to do the same)
- the possibility of a press event to bring the issue forward
- the possibility of raising the issue at parliament
We agreed to meet again before parliament sits in March.
My next task is to circulate a little fact sheet to friends, family and other contacts to assist them in preparing brief letters to the health minister and thier MLAs.
I have had a reply from my Libby Davies office, saying that she is willing to meet with me also.
p.s. I have had no luck with my letters to intervenional radiologists or their organizations.