Westmount Square Medical Imaging Montreal Now!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby CureIous » Thu Jan 21, 2010 12:09 am

Any way you can get the pics online? This is terrific news to hear of a successful ultrasound by a competent tech. Did he use a transcranial doppler? Also the fact that he was able to deduce that the stenosis/reflux was positionally dependent gives all of us pause, it's just one more subset of this condition. Some people just plain old have too short of a jugular vein or it is routed wrong for it's length and bam there ya go, stenosis, and curiously, just happened to have MS too.
Thanks for the report
Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
User avatar
CureIous
Family Elder
 
Posts: 1246
Joined: Tue Jul 14, 2009 3:00 pm
Location: Riverside, CA

Advertisement

Postby Billmeik » Thu Jan 21, 2010 8:20 am

hmm this place in montreal just became top of my list of places in canada to get the pictures. False creek seems useless, and the study at ubc? Maybe full? So now Im thinking of flying out to montreal...
User avatar
Billmeik
Family Elder
 
Posts: 694
Joined: Fri Nov 27, 2009 4:00 pm

Postby babiezuique » Thu Jan 21, 2010 9:37 am

The man who deos the test is very professionnal. He took 85 minutes to take as much as possible pictures of my neck. I did not check what was the label of his doppler machine... His name him Michael Baranyai. He told me that he was the type of ''research man''....very curious.

The wesmount Square imaging center said that they did not have the good protocol to make the mrv yet. I gave them the Dr Haacke site refenrence. They told me they would offer sonne the mrv with the good protocol....

A question of week... ( it is a very good business and they are in business)

Thank you to every body!
I discover this ''tims'' group and it makes me feel more tan ever suported by people that can really understand me!

Barbara
User avatar
babiezuique
Family Elder
 
Posts: 121
Joined: Mon Dec 07, 2009 4:00 pm
Location: Montreal

Postby shye » Thu Jan 21, 2010 4:14 pm

Barbara,
Do they inject dye into you to do the doppler?
Thanks
User avatar
shye
Family Elder
 
Posts: 758
Joined: Sun Nov 29, 2009 4:00 pm
Location: NYC

Postby babiezuique » Fri Jan 22, 2010 12:00 am

No dye just lubricant....on the rolling ball , it is the most uninvasive test you can do
User avatar
babiezuique
Family Elder
 
Posts: 121
Joined: Mon Dec 07, 2009 4:00 pm
Location: Montreal

Postby Johnson » Fri Jan 22, 2010 1:52 am

babiezuique wrote:The suffleling thing....
...he said that... he could see blood from my jujular encontering blood of arterie.... that this was not supose to be.... that is the suffleling thing!Barbara


That is very interesting. I saw my cranio-sacral massage girl a few weeks ago, and she said that my jugulars and carotid arteries were "pulsing" in opposition (both at same time!). She also said that there was a problem with the brachio-cephalic, and a "bulge", or balloon in the azygous. She did what she could, and I did have an improvement, but it is slipping. I will see her again next week.

A little OT - For any who think that cranio-sacral massage is hooey (I used to), this girl asked me one day what had happened to my left leg in the spot that I thought that I had fractured it (femur) 19 years ago. She could feel the "energy" disruption. She may be an exception, but it convinced me - and so do the improvements (temporary only). She costs $95 a pop, and I have seen her for years, so I can't afford her often...
My name is not really Johnson. MSed up since 1993
User avatar
Johnson
Family Elder
 
Posts: 979
Joined: Tue Dec 01, 2009 4:00 pm
Location: Ucluluet, BC

Postby Jaguar » Fri Jan 22, 2010 4:23 am

Barbara

Baranyi is the technician who did my doppler a while ago. He also works at St. Mary's Hospital, where I went.

I've told other people - having the scan has made absolutely no difference to me. Baranyi is still learning, so whatever he sees or does not see is suspect. he's the first to admit that. But at least he is learning... that's a lot better than most!

The important thing is to find a surgeon (Hello Poland). They do their own scans - that's a good thing. So I'm just sitting and waiting for my appointment in 2011! But I also feel sure that other surgeons in other countries will become accessible to us, and I'll go wherever I can.

The fact is that if Baranyi had not seen anything, I'd be doing the exact same thing as if he had seen something!

Paul
User avatar
Jaguar
Family Member
 
Posts: 90
Joined: Fri Dec 11, 2009 4:00 pm
Location: Montreal

Postby babiezuique » Fri Jan 22, 2010 9:22 am

I'm on the Simka's list for next january :) I still have one year to figure if ther is other possibilities in canada... I'm actually in contact with a doctor in france who works in a private hospital and she already operated a man with ms... with confused jugular.

I'm working hard, it 'is become a job to find a way to be checked and have the right follow. I'm actually realising that I'm the best doctor for me. :)

Barbara
User avatar
babiezuique
Family Elder
 
Posts: 121
Joined: Mon Dec 07, 2009 4:00 pm
Location: Montreal

Postby Jaguar » Fri Jan 22, 2010 9:25 am

I think we are all finding that we are the best resource for ourselves. I no longer have faith in my neurologist to provide the best care for me.
User avatar
Jaguar
Family Member
 
Posts: 90
Joined: Fri Dec 11, 2009 4:00 pm
Location: Montreal

Postby babiezuique » Fri Jan 22, 2010 9:48 am

The last time i saw my Neuro at CHum Notre dame Montreal. After 8 years of rebif...paxil...lithium ( and i wont tell you the rest) I told him that i could not sued him or the psychiatrist. But i told him the ''system'' including the pharmas...and the relation doctors have with them... almost killed me. ( It is true) I looked at me and told me: '' I'm really sorry''. But you know, what can you do with this : '' i'M sorry when you lost alomost ten years of your life? From 26 to 35... ?

He never tolm about B12, never about diet, never about... well the only thing he was able to do with me was this childish stupid game of: touch you nose touch my finger....

When i called for an apointement this fall... The Nazi secretary said : WE WONT RETURN ANY CALL AND GIVE ANY APOINTEMENT ABOUT THE ZAMBONI THING....

after ten years of : ''touch my finger touch you nose'' I think i'm going to think more about sueing!

Yesterday, a friend of mine who has ms for 16 years, who did the doppler and the mrv and she is Jugularly broke... Saw her Gp yesterday and tested positive to Hugues syndrome!

It seems tha the third of ms people have Hugues syndrom....

Go get tested!

I'will this week:0

so pleased to be suround by you all!

Barbara
User avatar
babiezuique
Family Elder
 
Posts: 121
Joined: Mon Dec 07, 2009 4:00 pm
Location: Montreal

Postby vendredi5h » Fri Jan 22, 2010 6:55 pm

Jaguar wrote:I think we are all finding that we are the best resource for ourselves. I no longer have faith in my neurologist to provide the best care for me.

I really feel mainsteam medicine is something parallele to the path I'm travelling. It exists, but it's totaly useless for us. It's even bad: to much big pharma and egos. I'm surely not including those passionate scientists in this category.

I cannot imagine being in the pre-Internet era. We now have much more power then before, and when we feel a "specialist" or television is trying to push something into our throat, a couple hour googling and we've got a good idea about the whole story. We are much less easily manipulated.

Yannick
User avatar
vendredi5h
Family Member
 
Posts: 38
Joined: Sat Oct 17, 2009 3:00 pm
Location: Quebec, Canada

Westmount Square

Postby savannahstarr » Sat Jan 23, 2010 1:49 pm

Are they doing this doppler without a referral/requisition from a doctor?! I am in Montreal and have been trying for ages to get a doctor to send me to get one...
User avatar
savannahstarr
Getting to Know You...
 
Posts: 14
Joined: Fri Jan 22, 2010 4:00 pm
Location: Montreal

Postby Jaguar » Sat Jan 23, 2010 1:55 pm

This is from their website (http://www.radiologymontreal.com/index.php):

Doppler ultrasound examination of the neck, screening for chronic cerebrospinal venous insufficiency in ms patients

WSMI is now offering an extensive Doppler ultrasound evaluation of the jugular and vertebral veins of the neck, in order to determine if any venous insufficiency exists. This examination can detect anatomical or flow direction abnormalities that have recently been linked to Multiple Sclerosis. To make an appointment, please call us to make a booking at (514) 939-9764 x 2714, once you have a requisition from your physician
User avatar
Jaguar
Family Member
 
Posts: 90
Joined: Fri Dec 11, 2009 4:00 pm
Location: Montreal

How was the ultrasound?

Postby 2mspatient » Tue Jan 26, 2010 12:26 pm

Hi babiezuique,

Can you tell me the result of the ultrasound? I would like to do the same. I live in Toronto so I can travle to Montreal.

You can send me an email to: 2mspatient@gmail.com

Thanks.
User avatar
2mspatient
Getting to Know You...
 
Posts: 14
Joined: Mon Jan 25, 2010 4:00 pm

Postby babiezuique » Tue Jan 26, 2010 12:30 pm

I did not reveived it yet.... but he already told me right after the test...what he saw... I know I have problems with my both jugular...
User avatar
babiezuique
Family Elder
 
Posts: 121
Joined: Mon Dec 07, 2009 4:00 pm
Location: Montreal

PreviousNext

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service