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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Vonna » Fri Jan 22, 2010 9:41 pm

Thanks for the article sbr487,
Saved it in my favorites.
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Postby Vhoenecke » Sat Jan 23, 2010 7:59 am

Only in America!!
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Postby Jugular » Sat Jan 23, 2010 9:50 am

I think using drugs developed from the wrong model of MS can be dangerous. These types of therapies are akin to treating repeated hammer strikes on one's thumb by suppressing the body's swelling and bruising response. If the CCSVI model proves out, the FDA (and similar bodies) should review some of the MS drug registrations.
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Postby paulmur » Mon Jan 25, 2010 8:15 pm

There were yet two other drugs anounced today: fampridine-SR and AMPYRA

Maybe this is a good sign. Perhaps Pharma is attempting to get all their drugs out in public view before clinical results prove CCSVI is legitmate and takes the forefront of treatment. If you had spent 10m on research only to realize it was soon going down the crapper because a surgery (of all things!)
was fixing the same thing and soon to overshadow your latest concoction you would want get there first no?
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Postby MrSuccess » Mon Jan 25, 2010 9:06 pm

this is a possibility . Good thinking Paul. The Buffalo study results will change everything . :idea:

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Postby ms2009 » Tue Jan 26, 2010 11:09 am

A lot of good news are being spread and bad news as well. It should be clear that we have to be patients before really build a lot of hope on something.

Yes big Pharma might feel the threat but not all doctors are really working for big pharmas. The major problem with CCSVI is that it is new, not proven, and coming from Europe (not from USA).

Doctors are not willing to take chances and play with the MS societies especially in US and Canada as those are huge organizations and can lobby well against the doctors sometimes.

Let us just want for few extra months and I hope it will be to the best of everybody.
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Postby Vonna » Sat Feb 13, 2010 12:11 pm

Hi all,
With all the new reports, it seems more than ever that someone is working overtime to fight CCSVI.

I posted your comment on CCSVI Worldwide Victory. ... erest.aspx

I did not use your name without your permission. I will add your name to the quote to give you credit if you like. Just let me know.

All comments here are relevant, but I could use only one. Please visit the site above for more Conflicts of Interest articles.

If you have any articles of your own, let me know.

I am always referring people from CCSVI Worldwide Victory to this site. You all inspire me!

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