silly CCsvi question

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

silly CCsvi question

Postby dkep11 » Thu Jan 21, 2010 7:10 pm

Hi all

silly CCVSI question: With the vein blockage so common (>50%, I've seen 90%) - why get tested at all?

It would seem stent placement would also be able to report on whether the vein is in fact blocked.

Is anyone in CO doing this currently?
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Postby esta » Fri Jan 22, 2010 9:14 am

hi dkep11
I think it's a personal choice, and it' s 'a just want to know thing'. In the beginning after the W5 report I was determined to be tested also but that didn't solve anything and I found myself e-mailing Dr Simkat in Poland and now I am scheduled in June for testing and the procedure. Others want to be tested in the hopes I think that the operation can be done here in North America quicker and cheaper than going overseas. I just turned 60 just got engaged and don't want to waste two more years of my life waiting.
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Postby esta » Fri Jan 22, 2010 11:46 am

It's me again
just doing some reading on this forum and I now reaiize getting tested is very important for the type of people that can find intervenetional and neuro radiologists. And they're are able to talk with them about CCSVI.

Thank goodness for people like that., they are the ground breakers of this whole movement. I think for the rest of us, it's an uphill battle left to the brave, and then after words we can do the ground work in confidence.
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Postby Cece » Fri Jan 22, 2010 6:39 pm

I hope it's not too much of a battle. I've got an appointment Wednesday with my general practitioner. I'm making a log of my daily neck/base-of-skull aches and have printed out a few of the research articles. We'll see if she'll refer me to an interventional radiologist.
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Postby esta » Sat Jan 23, 2010 1:18 pm

GOOD LUCK, IT MAYBE JUST FINE!! JUST DON'T GIVE UP IF IT ISN'T
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