CT-SCAN

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CT-SCAN

Postby AJWANTSACURE » Fri Jan 22, 2010 4:23 am

can anyone tell me if a CT-SCAN would be able to show CCSVI? I have a Deep Brain Stimulator (DBS) for my hand tremors from MS, therefore it is very diffficult to find someone / somewhere that can give me an MRV?

I just know I have stenosis, but the dr I have been to is not following Zamboni's prrotocol and therefore he is looking at wrong images and keeps telling me everything is normal. Well of course it is, the Dr is looking at arterial flow not the jugular & az :?: ygos veins.

Thanks for your help,
AJ
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Postby costumenastional » Fri Jan 22, 2010 6:33 am

i think ct can detect ccsvi but a colour doppler scan could be even more useful.

good luck.
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Postby AJWANTSACURE » Fri Jan 22, 2010 7:04 am

Costume, thnx for the info. the dr did a color doppler of my neck and transcranial color doppler. Like I said before I do not believe (i know) the dr did not follow proper protocol.........im seeking out all my avenues.
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Postby costumenastional » Fri Jan 22, 2010 7:07 am

i wish i could help more...

was he aware of Zamboni's findings? i mean, did he read any papers?
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Postby AJWANTSACURE » Fri Jan 22, 2010 7:12 am

printed all of zamboni's papers and email them to him. I think the dr thinks it's just going to be a routine check...............well u and i both know it isnt. I just want a dr to sit and read the protocol and follow it according to Zamboni.
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Postby costumenastional » Fri Jan 22, 2010 7:28 am

you and me and all of us. keep trying, you ll get there. even if it's not tomorrow, it will be soon. in Greece it's almost impossible to make them interested. so i have to pay serious money to travel abroad just to see if ccsvi applies to me...but this is the only way.
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Postby AJWANTSACURE » Fri Jan 22, 2010 7:39 am

good luck to you costume! my best friend in college was from Greece.........he was so funny.
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Postby costumenastional » Fri Jan 22, 2010 7:40 am

i used to be funny too. and then i got diagnosed... ;)
good luck to you too
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Postby CureOrBust » Fri Jan 22, 2010 8:19 pm

I was told by Dr Dake (at Stanford) that the CT scan is less operator dependent than an MRV. He was firm in making it understood that the radiologist understood, it was of the veins and not the arteries and therefore there is "more delay". He recommended I get the CT done locally over an MRV because of this. My only issue with CT is the radiation exposure.

The doppler tests are proving to be very operator dependent.
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Postby AJWANTSACURE » Sat Jan 23, 2010 2:09 am

cureorbust -

thanks very much that is some greaat info to know. ill pass it on to my neuro
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Postby Algis » Sat Jan 23, 2010 3:31 am

Love you username :D My initials also are AJ and darn right: I want a cure!!! :D Wish you the best ;)
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