This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Mon May 20, 2013 12:07 am


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 23 posts ]  Go to page Previous  1, 2
Author Message
 Post subject:
PostPosted: Mon Jan 25, 2010 5:13 am 
Offline
Family Elder
User avatar

Joined: Wed Dec 02, 2009 4:00 pm
Posts: 521
ClaireParry wrote:
It does sound really suspect. I wonder if there is a way to use his email addess and have it re-directed elsewhere?

Is anybody else due out there soon to ask him??

He certainly HAS NOT asked for money upfront.

Pepe - thanks, that info is really helpful.

Claire


It is perfectly possible to fake a sender email address. It appears in cleartext in the header of the message code. The best way to confirm that the email is real is to reply asking for confirmation (the reply will go to the sender address even if the mail came from somewhere else).


Top
 Profile  
 
 Post subject:
PostPosted: Mon Jan 25, 2010 7:07 am 
Offline
Family Elder
User avatar

Joined: Tue Oct 20, 2009 3:00 pm
Posts: 218
Location: Worcestershire, U.K
Excellent Frodo, maybe AndrewK can do as you suggest and see what happens??


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 26, 2010 9:09 pm 
Offline
Family Elder
User avatar

Joined: Sat Nov 28, 2009 4:00 pm
Posts: 115
Location: Spokane, Wa
I would suggest calling the clinic to confirm these scheduling/cost issues. I can find the number tomorrow or maybe someone else can post it again. Brynn

_________________
41 years old, dx 1998, current EDSS 6.5


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 26, 2010 10:08 pm 
Offline
Family Member
User avatar

Joined: Mon Dec 07, 2009 4:00 pm
Posts: 59
Location: Vancouver BC
Brynn wrote:
I would suggest calling the clinic to confirm these scheduling/cost issues. I can find the number tomorrow or maybe someone else can post it again. Brynn


I spoke by phone with Dr S yesterday, and he confirmed that the email was genuine...he is trying to leave the administration side to others...Marta Cyba is now the Patient Coordinator who is sending the emails...I received another clarification yesterday, part of which stated:

The payment should be performed before arrival (please include your name in the topic of the payment) or upon arrival.


which appears to give us the option of paying when we arrive. One advantage of this new arrangement will be that transportation from the airport, either Katowice or Krakow, to the hotel, as well as transportation to the medical facilities is included, which makes life easier. Five days accommodation at the Park Diament hotel is included;

http://www.hotelediament.pl/strona,h5,main.html

It has been a bolt out of the blue to find my appointment changed from August to less than two weeks hence, may others also have the same good fortune. All the previous trailblazers who have received the treatment from Dr S (especially Erika, unstinting in her support) have given me tremendous info to prepare myself...and I will keep everyone aware of how things proceed.

Richard


Top
 Profile  
 
 Post subject:
PostPosted: Wed Jan 27, 2010 10:06 am 
Offline
Family Elder
User avatar

Joined: Sat Nov 28, 2009 4:00 pm
Posts: 115
Location: Spokane, Wa
Fantastic, Richard! That sounds like they are trying to put a bit of a system in place for those of us coming from quite a long way away! Trust me, I was just as shocked when he emailed me offering my spot last week! It was a far cry from September! I think everyone should get their travel affairs in order and bee ready. The Simka team might find themselves proceeding faster than they had anticipated, too, with the ability to move up more appointments! My CD of my surgery had #51/2010 written on it, so I would guess that maybe they have done 51 patients so far this month as od Jan 21st! :)

_________________
41 years old, dx 1998, current EDSS 6.5


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jan 28, 2010 12:18 am 
Offline
Family Member
User avatar

Joined: Mon Dec 07, 2009 4:00 pm
Posts: 59
Location: Vancouver BC
Brynn wrote:
Fantastic, Richard! That sounds like they are trying to put a bit of a system in place for those of us coming from quite a long way away! Trust me, I was just as shocked when he emailed me offering my spot last week! It was a far cry from September! I think everyone should get their travel affairs in order and bee ready. The Simka team might find themselves proceeding faster than they had anticipated, too, with the ability to move up more appointments! My CD of my surgery had #51/2010 written on it, so I would guess that maybe they have done 51 patients so far this month as od Jan 21st! :)


Thanks Brynn...If they have done 51 ops this year, they must be very busy and in need of good organisation..I will ask Dr S what his stats have been so far.... We also are going on Lufthansa, on travel points, and in Business...all I need now is to show my wife how to play Blackjack and she can clean up at the Casino while I get my veins straightened out.

Cheers
Richard
Dx'd SPMS 1996 EDSS 7.5


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jan 28, 2010 2:37 am 
Offline
Family Elder
User avatar

Joined: Tue Oct 20, 2009 3:00 pm
Posts: 218
Location: Worcestershire, U.K
Richardk - if I have missed this somewhere then I apologise - what is the new cost? I'm only going for the diagnostics but if I have a problem with my Vascular Surgeon here I'd like to go back to Poland, thanks.


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jan 28, 2010 10:27 am 
Offline
Family Member
User avatar

Joined: Mon Dec 07, 2009 4:00 pm
Posts: 59
Location: Vancouver BC
Claire... the attached gives the breakdown....


Katowice, 21 January 2010


Dear Sirs,

We kindly inform you that due to increased costs of medical insurance and costs of clinical researches, we have to change the price of Liberation Treatment (CCSVI) method. New price also includes transportation and part of accommodation costs during your stay in Poland. We have decided to cover non-medical areas with our assistance to increase performance of the Clinic and to shorten the waiting time for the procedure.

Since 25th January 2010 the costs will amount to:
 6 900 euro : angioplasty with stenting – 1 stent (if more than one stent is placed, each additional stent costs 500 euro)
 6 400 euro : angioplasty

The price includes:
 Vascular surgeon/angiologist consultation
 Color Doppler ultrasound examination
 MRI examination
 Endovascular procedure (angioplasty or stenting)
 introductory consultation with the leading doctor
 5-night stay in 4-star hotel (breakfast included)
 Transportation to the examination and procedure facilities (Doppler, MRI, surgery)
 Transportation from/to Pyrzowice (Katowice) or Balice (Kraków) Airport
 EuroMedic personnel assist during your stay
 telephone hot-line assistance

 If for medical reasons angioplasty or stenting cannot be performed the package price amounts to:
 2 700 euro : Full diagnostics with phlebography
1 800 euro : color Doppler ultrasound and MRI examination


Best regards,
Tomasz Ludyga
Director of EuroMedic
Specialist Clinics



I would imagine that if they haven't sent this to you that you're still under the old arrangement...

Richard


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 23 posts ]  Go to page Previous  1, 2

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Greetings from Poland (details on Zamboni's treatment in PL)

ianislavus

3

1343

Wed Feb 10, 2010 7:33 am

HappyPoet View the latest post

There are no new unread posts for this topic. CCSVI Confirmation & details didn't come...

RedPepper

2

1048

Sun Jan 17, 2010 6:46 am

jay123 View the latest post

There are no new unread posts for this topic. Contact details for patient co-ordinator

ClaireParry

6

1566

Sat Feb 06, 2010 6:29 pm

mangio View the latest post

There are no new unread posts for this topic. RE CONTACT DETAILS OF DR.SALVATORE SCLAFANI

seeva

2

469

Fri Mar 30, 2012 8:35 am

Cece View the latest post

There are no new unread posts for this topic. some details on adverse events listed by FDA

Cece

14

1037

Wed May 23, 2012 1:16 pm

1eye View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: