This Is MS Multiple Sclerosis Community: Knowledge & Support

hi wonky

wow thanks for sharing this
great news

As i osted in another thread, there is no placebo effect or whatever. CCSVI and MS is a reality and the only question is:
i dont have ccsvi, so what is wrong with me cause obviously it s not MS.

Bravo Wonky! I hope you continue feeling much better. I had some ups and downs after the stents were inserted but overall the changes have been significant. I hope you can get the British press involved. Perhaps in time for the Buffalo study publication?!!

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3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,

Wonky, this is the kind of report we all love to hear! Your post, along with the BNAC newsletter, makes this a very good day for us all.

"like I knew that you would !!!!".... That is a great CCSVI song !!! I'm so glad for you wonky !!!!

ozarkcanoer

Hi Wonky 1

Nice,very nice improvements,this is great news.

Pam

Great news Wonky 1,
placebo? i don't think so it's CCSVI
Another wonderful experience and a big hope for the rest of us.
Thank you for sharing.

V.

I am so happy for you! Enjoy each and every improvement!

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Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.

Exquisite
Congratulations to you Wonky. Enjoy your life once again. It is also so, so important to all of us to read about such improvements. We are witnessing real revolution and bright light in a very cruel and dark MS world. And it is happening right NOW in front of all of us!

Thank you for all your kind words.
Yes this is a happy day! Love that newsletter!
Despite me mentioning improvements in cognition earlier, I forgot to mention the warm feet. They just feel normal already.

Woo Hoo Wonky - sounds amazing. I'm so happy for you!!!!!!!!!!!

That is unbelievable and truly fantastic, Wonky!!! Brilliant stuff!

Having been bedded next to Wonky in Katowice in November, I couldn't see him driving a car 2 months later - maybe a wheelchair, but not a car.

Also, getting upstairs and balance improvements sound great!

Phil

But, are ye goin' to change your nickname from wonky1 to winky? You must be over the moon. Wink.

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My name is not really Johnson. MSed up since 1993

The results of everyone sound so fantastic. It just makes me wonder how long it will be before this is standard practice?

I know it's getting closer and closer, and Buffalo is going to deliver us a HUGE step forward ...

I just wonder if it's worth it to start planning a trip abroad, or wait here in the US?

Neither - Start contacting Interventional Radiologists/Vascular Surgeons in your area. If you are persistent, you should find one who is interested in helping you.