Poland part 2

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby sunlounger » Fri Feb 05, 2010 4:09 am

hi wonky

wow thanks for sharing this :D
great news
User avatar
sunlounger
Family Elder
 
Posts: 110
Joined: Wed Nov 04, 2009 3:00 pm

Advertisement

Postby costumenastional » Fri Feb 05, 2010 4:13 am

As i osted in another thread, there is no placebo effect or whatever. CCSVI and MS is a reality and the only question is:
i dont have ccsvi, so what is wrong with me cause obviously it s not MS.
User avatar
costumenastional
Family Elder
 
Posts: 740
Joined: Sat Jan 31, 2009 3:00 pm
Location: Greece

Postby gibbledygook » Fri Feb 05, 2010 4:51 am

Bravo Wonky! I hope you continue feeling much better. I had some ups and downs after the stents were inserted but overall the changes have been significant. I hope you can get the British press involved. Perhaps in time for the Buffalo study publication?!!

8)
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
User avatar
gibbledygook
Family Elder
 
Posts: 1414
Joined: Mon Feb 14, 2005 3:00 pm
Location: London

Postby tzootsi » Fri Feb 05, 2010 8:21 am

Wonky, this is the kind of report we all love to hear! Your post, along with the BNAC newsletter, makes this a very good day for us all.
User avatar
tzootsi
Family Elder
 
Posts: 374
Joined: Sun Nov 22, 2009 3:00 pm

Postby ozarkcanoer » Fri Feb 05, 2010 8:23 am

"like I knew that you would !!!!".... That is a great CCSVI song !!! I'm so glad for you wonky !!!!

ozarkcanoer
User avatar
ozarkcanoer
Family Elder
 
Posts: 1273
Joined: Thu Oct 15, 2009 2:00 pm
Location: St. Louis, Missouri

Postby pgm1 » Fri Feb 05, 2010 9:22 am

Hi Wonky 1

Nice,very nice improvements,this is great news.

Pam :D
User avatar
pgm1
Family Member
 
Posts: 73
Joined: Mon Nov 23, 2009 3:00 pm
Location: Canada

Postby Maestro » Fri Feb 05, 2010 9:28 am

Great news Wonky 1,
placebo? i don't think so it's CCSVI :!:
Another wonderful experience and a big hope for the rest of us.
Thank you for sharing.

V.
User avatar
Maestro
Family Member
 
Posts: 25
Joined: Tue Jan 26, 2010 3:00 pm
Location: BC, Canada

Postby magoo » Fri Feb 05, 2010 9:42 am

I am so happy for you! Enjoy each and every improvement!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
User avatar
magoo
Family Elder
 
Posts: 557
Joined: Thu Sep 10, 2009 2:00 pm
Location: Charlotte, NC

Postby Reytan » Fri Feb 05, 2010 10:27 am

Exquisite :!: :!: :!:
Congratulations to you Wonky. Enjoy your life once again. It is also so, so important to all of us to read about such improvements. We are witnessing real revolution and bright light in a very cruel and dark MS world. And it is happening right NOW in front of all of us! :D
Reytan
Family Member
 
Posts: 35
Joined: Wed Jan 13, 2010 3:00 pm

Postby wonky1 » Fri Feb 05, 2010 12:22 pm

Thank you for all your kind words.
Yes this is a happy day! Love that newsletter!
Despite me mentioning improvements in cognition earlier, I forgot to mention the warm feet. They just feel normal already.
User avatar
wonky1
Family Elder
 
Posts: 113
Joined: Thu Oct 08, 2009 2:00 pm

Postby ClaireParry » Fri Feb 05, 2010 12:52 pm

Woo Hoo Wonky - sounds amazing. I'm so happy for you!!!!!!!!!!!
User avatar
ClaireParry
Family Elder
 
Posts: 218
Joined: Tue Oct 20, 2009 2:00 pm
Location: Worcestershire, U.K

Postby Brainteaser » Fri Feb 05, 2010 7:13 pm

XX
Last edited by Brainteaser on Sat Aug 09, 2014 9:59 pm, edited 1 time in total.
User avatar
Brainteaser
Family Elder
 
Posts: 435
Joined: Fri Jan 14, 2005 3:00 pm
Location: Melbourne, Australia

Postby Johnson » Fri Feb 05, 2010 8:06 pm

But, are ye goin' to change your nickname from wonky1 to winky? You must be over the moon. Wink.
My name is not really Johnson. MSed up since 1993
User avatar
Johnson
Family Elder
 
Posts: 979
Joined: Tue Dec 01, 2009 3:00 pm
Location: Ucluluet, BC

Postby mshusband » Fri Feb 05, 2010 8:10 pm

The results of everyone sound so fantastic. It just makes me wonder how long it will be before this is standard practice?

I know it's getting closer and closer, and Buffalo is going to deliver us a HUGE step forward ...

I just wonder if it's worth it to start planning a trip abroad, or wait here in the US?
User avatar
mshusband
Family Elder
 
Posts: 249
Joined: Sun Jan 24, 2010 3:00 pm
Location: Pittsburgh, PA, USA

Postby tzootsi » Sat Feb 06, 2010 12:03 pm

mshusband wrote:The results of everyone sound so fantastic. It just makes me wonder how long it will be before this is standard practice?

I know it's getting closer and closer, and Buffalo is going to deliver us a HUGE step forward ...

I just wonder if it's worth it to start planning a trip abroad, or wait here in the US?


Neither - Start contacting Interventional Radiologists/Vascular Surgeons in your area. If you are persistent, you should find one who is interested in helping you.
User avatar
tzootsi
Family Elder
 
Posts: 374
Joined: Sun Nov 22, 2009 3:00 pm

Previous

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service