Poland part 2

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Poland part 2

Postby wonky1 » Sat Jan 23, 2010 7:20 am

Poland part 2
After my first procedure in November when I had balloon angioplasty there was a massive improvement in my symptoms.
However for the last month or so I have been reverting to my pre-op state.
Dr Simka thinks it likely that my veins have re-occluded. So on Monday I’m going back to Poland.
This time I will probably have stents.
Hopefully my improvements will return and stay.
I’ll let you all know.
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Postby ClaireParry » Sat Jan 23, 2010 7:28 am

Hi Wonky,

thats a shame, but really great that you have been able to get back so quickly.

It seems that a few people have restenosed with angioplasty and so stents are really the way to go??

I'm so glad to hear that your improvements were marked!!

Hope it all goes to plan.

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Postby cathyb » Sat Jan 23, 2010 8:06 am

Sending you all the best, hope everything goes smoothly!

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Postby crocky » Sat Jan 23, 2010 8:25 am

Only just heard a couple of days ago that you were on your way back to Poland - that's bad luck, but good that the initial results were so promising and great that Dr Simka was able to fit you in again so quickly.
Best of luck with you procedure this time, and of course keep us all undated on here.
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Postby ErikaSlovakia » Sat Jan 23, 2010 8:27 am

Good luck, Wonky!
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby Brynn » Sat Jan 23, 2010 8:55 am

Have a prductive trip, Wonky. It is too bad that it didn't hold but I suppose it is nive to see that the doctors aren't aways trying to load us all up right off the bat. SO NICE HE FIT YOU IN FAST! :D Take care, Brynn
41 years old, dx 1998, current EDSS 6.5
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Wnkey,best of luck to you.

Postby alby » Sat Jan 23, 2010 9:31 am

I was wondering why you didn't have stents in the first place, Dr. Simka mentioned in his email to me that chances of re-occluding without stents is more than 50%, and he prefers stenting unless it is dangerous to do so.
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Postby SandyK » Sat Jan 23, 2010 11:39 am

Best of luck! You'll come back right as rain.
Diagnosed 1994, Self EDSS is 6.5
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Good luck

Postby Dovechick » Sat Jan 23, 2010 4:02 pm

Looking forward to hearing all about it at the end of next week.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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Postby leetz » Sat Jan 23, 2010 10:16 pm

COULD SOMEONE PLEASE PLEASE TELL ME HOW MUCH THE PROCEDURE WILL COST IN POLAND (US DOLLARS)...PLEASE...i am desperate and need to know...family willing to do fund raiser to help pay for the cost...please help!!!
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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Many times

Postby fiddler » Sat Jan 23, 2010 10:58 pm

Leetz, the price list has been posted MANY times in this forum: the cost for the assessment and procedure altogether will total between 6,000 and 7,000 US, depending upon the exchange rate on the day of the transaction. However, that is with Dr. Simka, who is booked into 2011. I don't know what the prices will be at other clinics in Poland and Bulgaria that may (or may not) be able to genuinely offer comparable services.

Also, I hope you don't mind if I make a suggestion: try not to sound so desperate, because there are indications that there are scammers lurking on this site, waiting to prey on people looking for CCSVI assessments and treatments.

Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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Postby sunlounger » Sun Jan 24, 2010 8:24 am

Hi wonky
sorry to hear this :(
your surely get those improvements back :D

please keep us all posted
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Postby acol » Sun Jan 24, 2010 10:09 am

Hi Wonky1

I am really sorry that you have to go back but it is reassuring that Dr Simka has obviously built into his timetable some leeway to manage follow-up procedures which may be required in some cases. Best of luck with your trip. Many people on this site will be as interested in this follow-up as with your initial trip.
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Postby Edser » Sun Jan 24, 2010 1:15 pm

Good Evening TiMS & Wonky 1,
Have a plesant & safe trip to Katowice.I really hope the stent's will give you a new lease of life :D
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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Postby pgm1 » Sun Jan 24, 2010 1:59 pm

Hi wonky

Sorry to hear you have to go back and i hope what improvements you had come back.

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