He was obviously glad to speak to someone who had been treated. It surprises me a itsy-little bit that, here we all are searching our butts off to find medical specialist who will consider & discuss this new paradigm, yet, I have yet to hear of medical specialists tracking down treated patients to discuss/evaluate them personally. I think your meeting clearly shows that they would be interested.mrhodes40 wrote:He shook my hand several times thanking me for bringing this to his attention. He and his partners he said are very interested in this new paradigm; they have had a meeting on it already. I had sent him a considerable amount of literature before our visit and he requested several specific papers if I had them. Naturally I was able to accommodate.
I'm here every day, just trying to keep up with all the posts.mrhodes40 wrote:Hi Cure! Glad to see you!.
The Dr that had my Dopplers done (who also thought they were pretty simple) was also a stroke specialist. The more and more I think of it, its becoming clear the sonographers associated with a stroke clinic are in the best position to perform the dopplers. These tests were so run of the mill for my guys. I may discuss the possibility of a referral to a stroke specialist with my GP next. As you say, these guys would or know people who work on vessels near the CNS.mrhodes40 wrote:This isn't just any neuroradiologist--he is one of the designated ''Top Doctors'' locally he takes clots out of stroke victims with great success. He goes in to the BRAIN..... all the time.
...When I told him that I would like deep cerebral veins dopplers to see if I have any reflux since Dr D doesn't have access to a person who can do that he said that he can do them...they do these in his practice BUT:
I think I know why my Sonographer only found 1 instead of two issues. The neurologist who organised it, probably felt so comfortable with the scans that he didn't (or only skim) read the specifics as to the configuration of the ultrasound equiptment, in the instructional paper (which I provided him). I also remember, it appeared that the first the sonographer heard she was doing an ultrasound for MS was when I walked in the room. The Dr seemed to just quickly give her a one minute run-down of what he wanted; it's possible, she did not get to read of the special configuration Zamboni had.mrhodes40 wrote:"Dopplers like that are very operator dependent and I do not know exactly what Dr Z is looking at though I can see in a blinded study he is looking at something pathognomic, .... Like he already figured out that these may not work out?? I was VERY impressed by that, I mean my jaw was dropped and my confidence in him went through the roof at that considering all that we collectively have been through trying to get a doppler to show something.
The only "problem" with performing the ultrasound on you, is that you have been "fixed", and hopefully he wont find any failures on your ultrasound. But I certainly think its a damn good follow up to surgery.
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