Advice on testing CCSVI

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Advice on testing CCSVI

Postby dado84 » Sat Jan 23, 2010 7:23 pm

HI

Few days ago i had my Extracranial Doppler scan of bilateral internal jagular veins and stenosis or reflux have not been detected. However in conclusion it says mildly reduced diameter of both right and left vertebral veins in the erect and supine position and mild reduce flow in the right vertebral the erect position. Trancranial doppler hasnt been performed because another probe was needed and it was very costly. This was in Melbourne Australia anyway with this conclusion it appears that i haven't got CCSVI. Now my question is what other specific tests should i be requesting to really make sure CCSVI is not problem in my case or is it?
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Re: Advice on testing CCSVI

Postby CureOrBust » Sun Jan 24, 2010 4:43 am

dado84 wrote:...with this conclusion it appears that i haven't got CCSVI.
CCSVI is a condition identified by Zamboni, and therefore to say you have it or don't have it, you need to perform ALL the examinations to the exact protocol. Its like saying I have had a X-Ray (because an MRI was too expensive), and they could not see any lesions, therefore I don't have MS :?

dado84 wrote:Now my question is what other specific tests should i be requesting to really make sure CCSVI is not problem in my case or is it?
The dopplers as per Zamboni's specs. An MRV or CT from the top of your head to your diaphragm (not singly conclusive I don't think). Dr Haake's Protocol is one option, but I think he himself says that his current protocol is not definitive for CCSVI.
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Postby dado84 » Mon Jan 25, 2010 6:08 am

Yes very true. Thanks for your reply. I made an appointment with vascular surgeon in Melbourne hopefully he will be able to refer me for trancranial doppler scan or MRV.
Now to my knowledge doppler scan shows blood flow and is able to detect reflux but MRV is ultimate in detecting narrowing and stenosis. If i am wrong please correct me and also when it comes to protocols please inform me on what protocols are the most accurate in detecting CCSVI. I am aware by the previous reply that Dr Haake's protocol is the closest but still not 100% so if anyone is aware of accurate protocols please write
thanks
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