statistics/side effects for ccsvi ?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

statistics/side effects for ccsvi ?

Postby ghaith » Sun Jan 24, 2010 6:35 am

Dear all;
Can anyone help me to find information on how many MS people were 'liberated' and did they register any side effects?
I am thinking seriously of doing the procedure but I need more info to make an informed decision. 8O

Thank you and Best regards
Ghaith
RRMS 1992
SPMS 2002
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Re: statistics/side effects for ccsvi ?

Postby ErikaSlovakia » Sun Jan 24, 2010 7:00 am

ghaith wrote:Dear all;
Can anyone help me to find information on how many MS people were 'liberated' and did they register any side effects?
I am thinking seriously of doing the procedure but I need more info to make an informed decision. 8O

Thank you and Best regards
Ghaith
RRMS 1992
SPMS 2002

Hi,
well, the only side effect I can report was a little pain while injecting Clexane but I think it is side effect of the injection not of the procedure.
I do not think there is some official register. My face was hot 2 hours after the procedure. Not much but for sure. I would not call it a problem again.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby jimmylegs » Sun Jan 24, 2010 5:13 pm

have you read all the 'stickies' ghaith? is it something more than that that you're after?
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Postby ghaith » Mon Jan 25, 2010 1:30 am

thank you so much for your answers. the sticky topics are very useful however they are full of extra 'unwanted' posts and somewhat not sticking to subject. Due my bad eyesight I cannot read so many pages and I was looking for something more obvious like
-what should I expect as side effects and such...
-How many people have tried this
-what were the MS symptoms before and after.

I love prompt answers from Erika, Thank you Erika.
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Postby jimmylegs » Mon Jan 25, 2010 5:08 am

the tracking project sticky has off topic posts deleted. still lots of details in there though, certainly not a short read.
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Postby ghaith » Mon Jan 25, 2010 5:18 am

Thank you so much for your help
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