costumenastional wrote:I ll go wherever it goes, but i wont get crazy over this. I am newly diagnosed and my symptoms are manageable but people who have lived 10, 20 years with ms could wait a few months also.
Sorry if i offended anybody folks. All i am trying to say is that if ccsvi is indeed the reason MS happens it wont take long to become mainstream. It s a good thing to get a date from Simka or whoever but lets try to keep our shit together in the process.
cheerleader wrote:Dr. Simka is a caring, concerned and very serious doctor. wishing you the best, Chris, truly. I'm sorry.
shye wrote:easy for us not receiving this to comment, but for those of you expecting and hoping to soon be treated, it definitely could have used a softer tone to convey such dismal news.
And some of you bring up that the increased price is not that unreasonable by comparing it to what would be charged in the US--there is no comparison.
One, a lot of people here then would be covered by their insurance, and two, the issue really seems to be that Simka would need the money in order to expand.
Chris1967 wrote:cheerleader wrote:Dr. Simka is a caring, concerned and very serious doctor. wishing you the best, Chris, truly. I'm sorry.
Cheerleader I will take your word for it. Im sure he is real and Im sure he is caring. I wanted to thank you for writing me with these words of encourgement. I appreciate that.
It is very hard to be losing a little more function bit by bit. It seems I havent had a break in years. Im not used to losing, after all the years MS has had to teach me how to be a good loser I'm still not good at it.
But cheerleader thank you sincereley for taking the time to respond so sincereley.
My Best to You and Jeff
Zeureka wrote:I am also still trying (managed to get an appointment with a Professor of the vascular Ferrara dep next week)...and lets see... he'll certainly tell me more about the political block. I'm very curious to see what he will say.
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