tzootsi wrote:My wife who has mild MS, has been talking to an interventional radiologst. We got him quite interested in the whole CCSVI issue (he read Zamboni's papers), and was eager to do a doppler on my wife. After doing a 10 minute doppler, he did a few hmmm's, and then said there was something going on in the left jugular. This was a few weeks ago. He just contacted us, and wants to go ahead with a venography and angioplasty (if necessary). When my wife asked him about doing an MRV, he felt it wasn't necessary - the venography will show any problems.
This doctor is the head of department, and appears quite confident this is the way to go. No MRV since the doppler picked something up.
At this point, whatever works. There's no one-size-fits-all approach here, dopplers are useless in the hands of the unskilled, and/or using inferior equipment especially without transcranial. MRV's equally have their problems, if also done incorrectly. The two different approaches cannot be categorized into absolute terms, i.e. "good or bad". Since Ultrasound is SO operator dependant, even WITH the best equipment, some will be left with little alternatives until more UT testing, done properly, with the proper equimpment, is available to the millions who need it. CT, MRV, whatever it takes, and for some that might include just plain old waiting until the whole diagnostic situation improves.
If your doc sounds competent, and confident, and feels an MRV would just be redundant and unecessary at this point, because there is something clearly shown on the UT, then venogram in my mind sounds like a logical next step. All 4 of my stents were placed without benefit of an irregular ultrasound, it was perfectly normal. The MRV said otherwise, but MRV's of course can't readily detect incompetent valves and other issues.
Everyone presents differently, that's a big point here, some have glaringly obvious pathologies present like a big arrow saying, LOOK HERE, some have more subtle stuff happening that is more difficult. Zamboni won't be cloned any time soon, or his equipment, but they are definitely working on it. I know my venogram showed so much nasty looking collaterals that even people with no medical knowledge look at the pics and recoil. Ultrasound, squeeky clean, but of course there was good reason for that, once again, equipment+training deficiences.
Sounds like you are on a good path here from my POV, keep us posted! This month has been so laggy in the good/great news department ala testing, I personally know at least 5 people who've been tested, and they aint all at false creek, and all showed negative for CCSVI, but none have lost hope just because someone inexperienced with this new paradigm, either couldn't conduct the tests properly, or interpret them properly. While we are glad for the ones that have been "caught" like up at False Creek, much more remains to be done to catch more.
My thought: every time things get into a hole in this thing, no good news, not necessarily any bad news, just internet pieces tossed around to fill the void, we get another shot in the arm that revs things up again. I'm speculating that that very shot of adrenaline is coming real real soon. Kind of reminds me of when there's a big news story that's broadcast live, but then nothing is happening for awhile, and the reporters start reporting on each other, or stuff just to fill the gaps. That's kind of where we are at, but there are some real gems hiding all around us, and your story is just that, an inspiration to others to strike out on their own crusade and not wait for leviathan institutions to get things going...