News from Dr. Zamboni- CCSVI lesions congenital

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

News from Dr. Zamboni- CCSVI lesions congenital

Postby cheerleader » Tue Jan 26, 2010 8:40 am

Received an e-mail from Dr. Zamboni this morning.

A Consensus Conference on Venous Malformations - headed by Prof. Byung B Lee from Georgetown - and experts from 47 countries studied the evidence and unanimously voted in favour of officially including the stenosing lesions found in CCSVI in the new Consensus document and Guidelines. Now published-

link to pub med

This paper can be brought to interventional radiologists and vascular surgeons. CCSVI lesions are classified as a truncular venous malformations - which means that vascular doctors have now classified this disease, CCSVI, as congenital- and preceding MS lesions.

Vascular doctors have agreed. CCSVI comes first.

Dr. Zamboni has been speaking to medical panels around the world. Yesterday was a "4 hour machine gunning of questions" by the Italian, Canadian and US MS Societies in Milan- Dr. Zamboni said he was able to answer all the questions with scientific evidence, and was quite pleased with the meeting's outcome. He'll be in North American soon.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby onesickrace » Tue Jan 26, 2010 8:49 am

amazing! thank you for all your work cheer!!!!
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Postby Billmeik » Tue Jan 26, 2010 8:53 am

so the fact it truncular is what makes it congenital? how solid is that? Are the neuros going to disagree?
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Postby cheerleader » Tue Jan 26, 2010 8:58 am

According to Dr. BB Lee...CCSVI begins during the embryonic phase.
http://phleb.rsmjournals.com/cgi/reprint/22/6/249.pdf

I'm sorry, but neurologists are not qualified to define venous malformations. The line has been drawn.
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Postby Billmeik » Tue Jan 26, 2010 9:01 am

btw I new Simka was coming to NA in early March when is Zamboni coming? and where is he going ?
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Postby sbr487 » Tue Jan 26, 2010 9:08 am

The rssearch has entered next logical step. I think last few days have been very +ve for CCSVI. It just keeps spreading and now this news :P
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Postby youbetcha » Tue Jan 26, 2010 9:08 am

Hello Cheer,

This is all great news!

Thank you so much for sharing the e-mail.
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Postby sou » Tue Jan 26, 2010 9:12 am

Hmmmm.

I can't seem to find the full text on the page provided. Can it be found anywhere or is it unavailable for the time being?

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Shortest joke: "We may not be able to cure MS but we can manage its symptoms."
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Postby cheerleader » Tue Jan 26, 2010 9:15 am

you have to purchase the paper here:

link


or give the link to your vascular doctor, they can get it for free-
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Postby debbie8067 » Tue Jan 26, 2010 9:35 am

At last - please,please can this be shown to and read by all the very sceptical
doctors,specialists and consultants at the National Hospital in London.
All I've got from them are dismissive answers( unless there are years of trials and tests) and an intrathecal Baclofen pump that was positioned wrongly last June, and resulted in a second attempt through surgery 6 months later.
This has left me with no tone in my legs which used to really help with transfers and balance,and now are totally wiped out.
Sorry for this slightly bitter rant, but being SP in a wheelchair, I don't have 2-3 years to "wait and see" or 2-3 years to watch the sadness in my incredible husband's eyes.
They HAVE to bring this to London-this is not a third world country,although it's starting to feel that way..........
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Postby ozarkcanoer » Tue Jan 26, 2010 9:39 am

Yippeee !!!!!!! The next several weeks are going to be interesting indeed. Dr Zamboni is coming to Canada and the USA. And Dr Haacke is convening his first annual CCSVI conference. We are the cheering section !!! Without cheerleader pushing us along, and without our voices, Dr Zamboni would be fighting a lonely battle.

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Postby AlmostClever » Tue Jan 26, 2010 9:45 am

So...can they prove MS is caused byCCSVI?

I assume this is the next step, right?
If you can't explain it simply, you don't understand it well enough. - Al Einstein
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Postby cheerleader » Tue Jan 26, 2010 9:53 am

AlmostClever wrote:So...can they prove MS is caused byCCSVI?

I assume this is the next step, right?


the correlation has been shown by Dr. Zamboni. Now the research needs to be replicated. Buffalo will give the first indication if this is so.
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http://ccsviinms.blogspot.com
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Postby itsjustme » Tue Jan 26, 2010 9:56 am

AlmostClever wrote:So...can they prove MS is caused byCCSVI?

I assume this is the next step, right?


Maybe they should prove the null hypothesis...
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Postby cheerleader » Tue Jan 26, 2010 10:10 am

Hey Marie...
Are you around? We can add this to the research sticky....
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